So I posted this morning that I just hit two weeks on Ibrutinib with no side effects. Now last night I had a beer I'd never had before and I didn't like it and didn't finish it. So today I had my favorite IPA and a Guinness (I'm from Dublin and love it) and I threw both out because they tasted so bad. Is this a known side effect? Boy I hope not.
This happened while I on was on meds for Pneumonia but went away after I stopped the meds.
Pat.
Mmm leave the alcohol out for 2 months as your liver has a lot to do getting rid of the dead CLL cells
Not really what I want to hear but it could be what I should do. But others have written and said they have a few drinks a week and that’s what I usually do.
I contacted the person managing the trial I’m on at The National Institutes of Health and she said hadn’t heard of anyone having this problem.
Pat.