Day 2 round 1

[lucyjack]

Hi, just home from my stay in hospital.

Received another rasburicane drip last night. Rest of rituxan and support meds this morning. Took antisickness and oral drugs this pm.

Been doing a bit of walking round whilst in hospital. Yesterday i managed to clock up 10,000 steps. Not feeling too bad so far. Off to take dog on a short walk a bit later. Just hope i can get some sort of normality. Will steer clear of people and be careful.

Thanks for your support.

[Marie-54]

Keep up the walking as much as you can and I wish you continued good appointments for the rest of the rounds.

[lucyjack in reply to Marie-54]

Thanks

[Havemercy]

Great news lucyjack. Look forward to your updates. I wish you a peaceful evening.

[lucyjack in reply to Havemercy]

Thanks

[Mandy56]

That’s all sounding good Lucy. Don’t worry if your energy dips on day 5 and for a while. It doesn’t happen to everyone, but it did happen to me and meant I did a lot of sleeping after day 5.

[lucyjack in reply to Mandy56]

I have a review with consultant next thursday which will b when my energy might b low. I hope i will b able to go and not b laid up! That bothers me that it will b at that point in cycle. Will have to see how it goes. Thanks for reply.

[JigFettler Volunteer]

Fab! You may not feel that bad. I did not. I felt my CLL illness lift from my shoulders like an old wet overcoat. Lymph nodes shrink. Ache subsides. Sleep better. Sweat less, stopped now. I still have hair and taste buds, Cycle 2 day 14. I have energy too... feels so strange, lush!

10,000 steps sounds a lot, take it easy. I try not to "rev" myself over 50%! Nourish yourself well. Hydrate properly. Care for infection risk. Use gloves when in garden etc. I have been advised not to mow lawn, or use my strimmer.

Glass have full, the prospects are def worth the journey.

All best wishes!!

Please keep sharing. Many of us are currently on the FCR trip at the same time as you.

Jig. UK

[lucyjack in reply to JigFettler]

Thanks x legs a bit wobbly today but not too bad so far. Its early days so i will take it steady and see how i go. So glad that u have been good. Its great to know that we can support each other. Cheers

[lucyjack in reply to lucyjack]

Miraculously my swollen neck nodes have nearly gone! In such a short time. Yipee

[Ohannie236]

Glad you're back home again, and very good for the morale to be able to walk your buddy. Talk kindly to yourself, try to do things when you feel up to it, rest when you need to (or have to! (-:), and realize you're brave just to be pushing through. After an extra week off for neutropenia, I'll be starting FCR round 3 on Monday. My lymph nodes disappeared after round one, and in spite of a few setbacks, in the last two weeks prior to each treatment I've been feeling better than I have in ages. It's a preview of coming attractions, I'm hoping! Wishing you all the best on your journey. Love and prayers from Ohio as you go forward.

[lucyjack]

Hi, I am just doing what i feel like at the moment. I think I am adjusting to only doing around 25 % of my normal activities OK. A bit frustrating at times but manageable with the prospect of better things on the horizon. All the best to you and wishing you a speedy recovery when treatment is over.