Soar Joints and back

[CAGIULIANO]

Next week I will be finishing my treatment of Leukeran and Gazyva.

I have been experimenting soar joints and quite severe lumbalgia

Has anybody any experience on the subject?

Thank you

CG

[Shooey]

I’ve had the same CG, finished the same treatment mid March and the joint and muscle pain kicked in about 2 weeks after. I could barely stand up straight and trying to use my right arm was agony. I did ask the clinical team if this was a short term side effect but did not get a definite answer. To be brought up at my visit next week. However, pleased to say that things are slowly improving and that regular exercise, although painful at times does help.

So, hopefully just a blip, I’ll know more next week!

Best wishes

Shooey

[CAGIULIANO in reply to Shooey]

Thank you, I am visiting the doctor today

Your experience is to me very valuable to understand what is happening

I don't think they give any importance to de pains, they just worry that the cll is better

All the best

[Shooey in reply to CAGIULIANO]

You’ve hit the nail on the head CG, it’s almost as if the treatment box has been ticked and so what’s the problem. All I asked for was a simple answer to a simple question, is it a known side effect or not and if so should it go away in time or is it now a permanent condition. Difficult? I didn’t think so! Let us know how you got on at the docs

Shooey

[CAGIULIANO in reply to Shooey]

Just back from the doctor

He explained that a percentage of patients treated with Gazyva have joint and muscle problems.

He said that normally these reactions get better with time. He explained he had chosen the Leukeran+ Gazyva protocol due to my age (80)

He explained that my results are good and that I should have a reasonable period without treatment in w & w

Next week I finish my sixth and last period of this protocol

Hope this information has some value to you

All the best

cg

[Shooey in reply to CAGIULIANO]

All positive then CG, good luck with cycle 6. Maybe we should compare notes on our aches and pains in six months, hopefully we’ll both be doing cartwheels!

Take care

Shooey

[Wroxham in reply to Shooey]

So glad you picked this up Shooey.