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CLL Support Association
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Remission with Ibrutinib and Venetoclax

This week marks the sixth period of 28 days with Ibrutinib and 4th period combination with Venetoclax of my trial (Vision trial, Netherlands).I officially reached a remission already. Very good results on blood work, almost all normal. I had a succesful coloscopy to exclude any gut nastyness. Some ferritin will be added to my daily menu of pills now.

Hardly experienced side effects, just some lack of energy still, muscle spasms and sinusitis (almost 6 months now).

More infusions or injections with IGIV to come.

I guess I am very lucky that these new medication could be developed by smart scientists, mice and heroic patients. Very grateful.

11 Replies
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So happy for you!!! It is such wonderful news!

Linda

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Fantastic news!! So good to hear! Thank you for sharing this.

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Congrats to you in achieving remission so quickly, Yvbb! Good luck as you move forward. :)

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Yvbb, I'm so glad for your good news! How great that you're in remission so soon! Wishing you renewed energy and much joy--to your loved ones as well. Hope you're making a list of all the amazing things you want to do. Keep us posted as you start checking them off, will you? Big hug!

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Yvbb, excellent news, so pleased to hear Vision trial is going well for you.

best, rob

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Yvbb, that is fantastic and I'm so happy to hear it!

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Great news yvbb, long may it continue, Terry

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Amazing news! Wishing you continued success in your trial (I have just begun a similar trial in the US)

Best,

Fell

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Excellent!

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This sounds very promising! So pleased for you x

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Good to hear - congratulations

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