Went to sleep easily and then suddenly woke up in 2 hours. Couldn't get back to sleep. Toss and turn and up and down and feeling horrible. Heavy eyelids begging to sleep but I lay down and it doesn't come. Been going on for months and worse now.
First it was the sweats, hyperhidrosis 20 hours a day for months. Sweat/Chill/Sweat/Chill. Then the sweats slowed way way down, but the chills became more and more. On a 35C day I would feel cold. The body was not adjusting temperature. No fever. Just chills, sometimes with a burning sensation on the skin.
Shuddering and shivering, it is a miserable feeling. When others are in shorts and short sleeves, I am wearing two long sleeve shirts and neck scarf and down shawl.
It is called Thermoregulatory Disorder. I typed it in the CLL search engine and nothing came up. I looked it up on the internet and only abstract academic things or vague references to symptoms of Parkison's or MS. They don't mention CLL.
So my questions are:
1. Is this another CLL thing for which there is no treatment?
2. Is this another CLL thing for which THERE IS a treatment?
3. Is this a threatening co-morbid condition in addition to the CLL?
4. Is there any treatment whatsoever it is, like a pill for the hypothalamus or something?
This happens every night now. It takes me all day to try and catch up on the sleep that I lost, and then, by evening time, I am usually almost normal again.
Love to you all precious beings,