I am a 47 year old male, father of two who was diagnosed with CLL just about 8 years ago. I've been on Watch and Wait until my check up last Friday, where my suspicions of having fatigue and a sense of fullness in my left side were confirmed. WBC was at 108K and PET scan confirmed my lymphnodes nodes were swollen in my Neck, armpits and abdomen. Also I have an enlarged spleen. My Onc helped navigate my health insurance and my first batch of Ibrutinib arrives tomorrow.
I decided to wait until Mon night to start as my kids have a lot activities this weekend and since I'll be on this forever, what's a few days wait. Nervous about side effects, but have heard nothing but positive results. Anyone who wants to share their side effect stories (good or bad), is love to hear them so I know at could be coming. Thanks, David