Had appointment yesterday with consultant and signed my consent form to be sent to Leeds for entry into FLAIR trial. I know it isn't a given thing and I have to wait for the results of my P53 blood test and confirmation I meet the criteria, but my stomach is churning and I didn't have much sleep last night. I have been on W&W for 3 1/2 yrs and thought I would be for a lot longer but these damn lymph nodes decided to enlarge in my neck, stomach and groin so the time has come for treatment. I knew it was time because I have just had a particularly bad virus, made worse by the nodes, where I was experiencing light headedness which was like vertigo which I have had before and my neck felt so heavy. I have a lovely consultant and equally lovely research and Macmillan nurse for which I feel very lucky after reading some of the stories on here regarding ignorant doctors etc.
If all goes to plan and because you have to start treatment within 12 weeks of having CT scan, I should start beginning of April.
I will keep you posted!!
Best wishes to all.