Uninformed

[Pixiemoon3]

I read quite a few of y'alls posts. And I have to say I had no idea there was that much I needed to know. I don't even know what most of the things that you all are being tested for. I never heard of them before.

I'm so out of the loop

[Newdawn Administrator]

This might be a good place to start Pixie. But don't beat yourself up about this, you're doing better than most of us regardless of 'being out of the loop!'

nccn.org/patients/guideline...

I'm sure someone will tell me if there's a more updated edition of this.

Newdawn

[Pixiemoon3 in reply to Newdawn]

Thank you Newdawn for the link. I will check it out for sure. I am very grateful I haven't flared like I did in '83. I believe my faith in God has had a hand in it as well

Pixie

[UK-Sparky]

Hey, there is a range of wisdom on this forum, I'm down the Knowhow low but cuddles and empathy high end! Love the pic pixiemoon3

Marc

[Pixiemoon3 in reply to UK-Sparky]

Thank you Marc. I'm so happy to have found all of you. I don't have a support system for any of my illnesses so I'm glad I'm here. I love that pic as well. It is me on most days lol

Joy

[scarletnoir]

Don't worry about it... it's clearly a very complicated condition. I went from diagnosis to treatment in 6 months, by which time I still knew very little - it was only 3 years later I found this site, and learnt a bit more.

All you need to know really, are:

1. Am I likely to need treatment soon? (If not, forget about it as much as you can!)

2. If yes, what treatments are available where I live? Which one is likely to work best for me? (You should combine discussion with your doctor and research on this site and elsewhere.)

Try not to get bogged down in detail!

[RJR1]

I thunk we all learn something new nearly every day. Sometimes it's a question we would never think to ask our Dr. And with answers comjng from all corners it is a much wider range than our own region. Here in AZ I wasn't referred to any type of support group... this is a good place