Good News of my CLL: Hi, I recently got more... - CLL Support

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Good News of my CLL

bkoffman profile image
bkoffmanCLL CURE Hero
13 Replies

Hi,

I recently got more good news on CLL from Dr. Byrd out of Ohio State.

My clone that is resistant to ibrutinib had stopped its relentless growth after almost a two year climb.

I am very grateful.

For a longer discussion of the mutations involved, please visit my last blog post at bkoffman.blogspot.com

For a discussion of some real world research on CLL by the wonderful Dr. George Follows, please check out this interview from ASH here: cllsociety.org/2017/01/ash-...

Stay strong.

We are all in this together.

Brian

cllsociety.org

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bkoffman profile image
bkoffman
CLL CURE Hero
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13 Replies
AussieNeil profile image
AussieNeilAdministrator

Good news for you Brian and for many who are worried about having some bad prognostic markers.

Thanks for sharing that encouraging news.

Neil

peas50 profile image
peas50

Wonderful news! Thank you for posting. I'm avoiding my CLL as much as possible - I have the luxury of W & W for now, and am grateful as I leave my worries in the hands of my haemotologist. Despite this, reality bites occasionally and I find solace here. Your blog is perfection - beautifully written - offering readers reliable information and a calm disposition. Thank you. I think I may try meditation and tea tonight also.

Jules from Oz x

Justasheet1 profile image
Justasheet1

Doc,

That's not good news, that's GREAT news! You are such an inspiration.

Jeff

Loves2walk profile image
Loves2walk

Wonderful news! Thank you for sharing.

vila profile image
vila

Happy to hear that Brian! All the best!

Vila

Name-1 profile image
Name-1 in reply to vila

Wonderful news,Brian!

Best regards!

Olga

db601 profile image
db601

So happy for you and for us!

How generous of you to have devoted your life to teaching us about true personal patient advocacy and how to take challenges head on with courage and strength beyond the borders of walls and limitations.

Thank you.

Diana

Peggy4 profile image
Peggy4

Great news Brian. Thanks for sharing. Well deserved. You do so much to support us all.

Peggy

newyork8 profile image
newyork8

Fantastic!

Yorkiemama profile image
Yorkiemama

Very glad to hear your good news, Brian!

SBMACLL profile image
SBMACLL

Great to hear!

Calopteryx profile image
Calopteryx

Really glad to hear your good news!

Judyanne profile image
Judyanne

Great news! Thank you for sharing and for all the help you provide.

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