shortness of breath

[bulldog123]

hi, is anyone like myself on ibrutinib . i am suffering with shortness of breath and feel exhausted, i am only on my 2nd month of taking ibrutinib, is this a normal side effect ?

[Calopteryx]

Hi, I'm on Ibrutinib as part of the Flair trial. I've been on it for 7 months and haven't had shortness of breath. However it affects us all differently and your symptoms may not be related to the treatment at all. I would let your medical team know so they can look into it. I hope it all resolves soon.

C

[Cammie]

I would advise you check the side effects of ibrutinib as I understand that chest infections and breathing difficulties may be one of them?

I would certainly report this to your medical team immediately so they can investigate.

Geoff

[JWalker]

I began ibrutinib June 1 and had chest congestion at the time. Once I began ibrutinib, I got very short of breath and my blood oxygen dropped to about 92%. I eventually got pneumonia for which no antibiotic treatment helped. We suspended treatment in mid-July.

I had a bronchoscopy and lung lavage in August and wound up in the hospital for 2 days with blood oxygen at 88%. It is mid October now and I am just now recovering with my blood oxygen level at 96 but no pneumonia.

I have not resumed treatment.

[deveritt]

I had bilateral pneumonia from swine 'flu in March and April this year, was very ill and spent almost 3 weeks in hospital. I am mostly recovered, some residual damage to one lung. I'm not on CLL treatment yet, but I wonder if previous pneumonia makes me more vulnerable to Ibrutinib side-effects?

[bulldog123]

sorry i cannot answer, its still all new to me, sure you will be fine

[Cllcanada Top Poster CURE Hero]

The ibrutinib drug monograph in Canada was just updated to include ILD, this should be discussed with your doctor... very unlikely... but worth mentioning

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