Day One Over.: Treatment day one over. It went... - CLL Support

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Day One Over.

Jacksc06 profile image
13 Replies

Treatment day one over. It went fairly smoothly, bit of an episode 15 minutes in. Had a drop in blood pressure, causing profuse sweating, Gasping for air & the shakes. Medics paused treatment for 30 minutes, put more fluids in then continued fluids & chemo in tandem. no further problems, Back tomorrow for more.

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Jacksc06
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13 Replies

Stay strong.

Sally

Jacksc06 profile image
Jacksc06 in reply toCLLCalifornia-USA

Thank you.

DMary profile image
DMary

I think the same treatment is in my near future so I'm watching your posts with self interest as well as my sincere best wishes for you. Thank you for posting your ongoing experience and please know that you are not alone.

DMary

Jacksc06 profile image
Jacksc06

Hi. thank you for your post. I will continue to post my progress. Very best wishes for your treatment also.

wroxham-gb profile image
wroxham-gb

Hi there.

During your treatment time try to stay healthy ie partial

Hermit mode. Drink loads water and be careful with what you eat. Its only for 6 months and does help. Not sure what country you are in but here in the UK we are heading into winter.

I wish you well for your future treatments.

Sue

Ps just read a previous and you live in Lincoln, Great Britian. So as advised be extra careful, lots of germs about this time of year and you will be vulnerable. You'll probably feel off for a few days and then pick up until next your next treatment. You'll be surprised at how quickly the time goes.

Not to far away from you in sunny Suffolk.

Sue

Jacksc06 profile image
Jacksc06 in reply towroxham-gb

Hi Sue, Appreciate the advice. Drinking about 8 pints of water per day whilst on treatment. (Spending hours at the loo also). I am in Lincolnshire. Have advised friends wishing to visit we will be outdoors whatever the weather. Strict hygiene routine also so fingers crossed.

wroxham-gb profile image
wroxham-gb in reply toJacksc06

One follows the other eh!

Good on the routine.

Sue

bigunwill2 profile image
bigunwill2

Second day will not be as bad and will be quick compared to 1st day. Drink lots of water. After 4 or 5 days you'll feel better, but probably will tire quickly.

Hope is goes smoothly.

I did not get in crowds to keep well. I used a mask when I had to get out shopping. I washed my hands lots.

Jacksc06 profile image
Jacksc06 in reply tobigunwill2

Hi. Drinking water like a camel. Second day went quite smoothly (8 Hours) Trying to avoid the public. Thanks for the advice.

casanova profile image
casanova

Hope day two goes better for you and sorry to hear of your "wobble". It's a but of a scare when you have a reaction on day one, I did with Rituximab four weeks ago and I was quite worried going in the following day for the second part. Thankfully all went well as did the next infusion last week. Keep strong and rest when you need to. Best wishes.

Maureen (Glossop, UK)

Jacksc06 profile image
Jacksc06 in reply tocasanova

Hi Maureen. I am in Lincolnshire uk. Things went better today, thank you for your post.

ap64 profile image
ap64

glad all went well overall and good luck today.

Jacksc06 profile image
Jacksc06

Thanks. Feel tired but ok second day went well.

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