Since posting last I have been back to the Churchill , cat scan was normal , nothing to report there , specialist was very laid back , doesn't want to see me again , referring me back to my GP for six monthly blood tests, increasing to annual after a year or so if nothing happens . In a letter sent to my GP , copied to me he states that in his opinion my Cll is very indolent and it is likely I will never need treatment , no guarantee , the levels have been very low and stable for two years , since first ' discovered ' ( I may have had it longer, who knows ) as I have said first I knew about it was this July , slipped through the net . I am encouraged by his letter , these guys don't spoof , with 17 years experience in his field I'll accept his opinion . So now I just forget it, if or until something goes wrong, but what a time I've had since July 10th , a date I will never forget ,obviously my next blood test will be a bit nerve wracking .i just feel very lucky , my next door neighbour , in her fifties has only weeks to live , and a good friend and fellow petrol head across the road had just been told he has less than a year to live with secondaries after fighting bowel cancer . Won't be posting again except with news , but will keep an eye on the site and chat from time to time , good luck every one . There'll be a cure one day, some clever people out there .
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