Friends,
This week in the Living Well with CLL section of the CLL Society website, [cllsociety.org] we have posted a talk given by Dr. Scott Irwin during the CLL Research Consortium in April 2015. He gave a talk about dealing with the psychosocial aspects of cancer and how to preserve our dignity when faced with a diagnosis of cancer. You can see that brief lecture here.[ cllsociety.org/2016/01/deal... ]
If you enjoy the topics posted in Living Well with CLL, we also have some very thoughtful articles written by patients within our quarterly newsletters, The CLL Tribune. [ cllsociety.org/newsletter] Mark Silverstein, a CLL patient shared some insightful perspectives in an article on The Importance of Meaning [ cllsociety.org/newsletter/q... ] found in our first issue, and an article on Compassion [ cllsociety.org/newsletter/q... ]in our second issue. They are really worth reading!
Janet Morrison, another CLL patient, shared her thoughts about How CLL Changed My Life [ cllsociety.org/newsletter/q... ] in our second issue that was published just prior to the holidays. How has CLL changed your life? With all that happens to our bodies following a diagnosis of CLL, it’s great to give some thought to the impact on our lives socially, psychologically and spiritually.
As we are preparing for the 2016 issues of The CLL Tribune, consider sharing your story, or advice, or perspectives on how CLL has impacted your life and consider authoring an article. Send us a message [cllsociety.org/contact-us/] and we can connect to discuss the details.
BE HEARD: Join lymphoma patients around the world to help others understand the lymphoma patient experience and especially the subtype of CLL! Complete the 2016 Global Patient Survey today! READ MORE [cllsociety.org/2016/01/part...]
CLL Meeting in Tampa, FL: For those of you in the Tampa area, there is a CLL patient meeting hosted by the Florida Society of Clinical Oncology (FLASCO) being held on February 11th at the Embassy Suites Tampa Airport at 5:00 PM. A complimentary buffet dinner will be provided. I’ll be there giving a talk about the importance of support groups. Also, you’ll have the opportunity to ask questions of the expert speakers. Register and find out more information here.[ flasco.org/events/living-wi...]
LAST CALL! For those of you in the Charlotte area, we just became aware of a patient meetings coming up in February: Thursday, February 4th in Charlotte starting at 5:30 PM at the Hampton Inn & Suites Charlotte (View Charlotte flyer). [cllsociety.org/docs/charlot...] CLL patients will be sharing their personal stories, and a local CLL expert will be providing a talk on the basics of CLL. You can call 844-482-6815 to register. A complimentary meal and parking will be provided and you are welcome to bring a guest. I will be at the meeting with an exhibit table and will stay afterwards to meet with attendees who may be interested in participating in a support group in the area. I look forward to meeting you there.
Stay strong.
We are all in this together.
Brian Koffman
Volunteer Medical Director of the CLL Society
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