Late last month, the CLL Research Consortium and the Blood Cancer Research Fund, hosted a patient education and empowerment meeting at UC San Diego Moores Cancer Center, in La Jolla, California.
Videos of that patient meeting are now becoming available on the Blood Cancer Research Fund, USCD website:
All I can say is watch the videos from the clinical trials latest from Gribben, Kipps, Castro, Jones, Wierda et al - lots to be excited about. I was so pleased I was there. Thanks to Brian Koffman, Laura Cleveland and the LLS for organising such a great conference for patients.
For those that (like me) have a poor internet connection and/or a low data allowance, it may be possible to add an extension to your browser to download a lower resolution version of the videos. I've added the extension "1-Click YouTube Video Downloader" to Firefox and I'm able to choose a video format designed for mobile phones that only uses 5% of the data requirement of the posted video. I can't read the slides, but I'm able to listen to the presenter, which is almost as good as having a transcript.
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