Today at this time 8 years ago I was in my GP's office having just been ordered to go to a hospital for tests that confirmed his suspicion of CLL.
Sometime in the first 2 months of grappling with a DX of CLL I discovered Chaya Venkat and PC's website clltopics.org, ACOR.org. and more recently HU. A member of ACOR sent me an email that I have kept to this day. The email predicted the median time of my probable demise at 8 years. I made up my mind at that time to regard my CLL as my teacher no matter what my fate may bring and to set as my challenge the task to beat the prediction, out of a sense of repulsion to be just median in anything. Twice on my journey it looked like my desire to avoid being a median survivor statistic would be through an early demise as a result of TX reactions but having arrived at the median point today, my goal is on doubling the time.
Persistence, a dash of good luck, timing and medical science may do the trick. I wish all of your journeys have a measure of the rewards I have encountered on mine.
My, how time flies when you are having fun