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CLL Support

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ABBV-101 update

Hi, I wanted to let you know that I'm faring well with the blood test results o...

RSV vaccine

Hi all I asked my GP about the RSV vaccine for the immunosuppressed today. I was...
annmcgowan profile image

need answer ASAP. Re infusions 😳😳😳

Is methotrexate similar to azacidine? Now the leukemia specialist is telling me...
JerrysGirl3 profile image

Acalabrutinib side effects

I posted recently that I had been diagnosed with gout in big toe and so came off...
Eucalyptus22 profile image

Shingles Vaccine

I have now nearly reached 65 years of age! My GP surgery is offering me the...
Marisa profile image

End of fixed duration treatment

Completed 2 yr treatment on Rituximab and Venetoclax approximately 4 weeks ago. ...

Study on diet and CLL

Has anybody seen this study before? It suggests that a "whole food, plant‐base...
Fred_Green profile image

CLL treatment

Hi all I was diagnosed with CLL in 2021 & was on watch& wait until jan this yea...

newly diagnosed

I’m newly diagnosed CLL. Very new! It’s been 3 days! 😀. My emotions are crazy, ...
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Not allowed to have the RSV Vaccine

Yesterday I emailed my GP (Archers Practice in Eastleigh, Hampshire, UK) to requ...
Maranman profile image

I’m still here :)

it’s been a while and my last post was not very positive . This is a quick updat...
Hilo13 profile image

On a break from Ibrutinib

I stopped taking Ibrutinib in February 2024. After five and a half years the sid...
Beattiem-UK profile image

Measurable residual disease (MRD) status predicts Progression Free Survival (PFS) for patients with Chronic Lymphocytic Leukemia (CLL)

Measurable residual disease (MRD) refers to the presence of disease at low level...
AussieNeil profile image
Administrator

Our story !

Six months ago I lost my mother A strong fighter for lymphoma that was d...
htam profile image

Venetoclax

Hi everyone , I am so glad with this site. My name is Anja, 67 years old , a...
jroon08 profile image

colonoscopy

The operation isn’t painful or difficult so don’t despair. I think with all the ...

cll and diarrhea

any suggestions how to mitigate the diarrhea. I’ve been on Venteclaxta 400 mg f...
Cll12 profile image

Starting V&O treatment

I have SLL and will be starting V&O treatment next week. Apparently I will have ...

I am still waiting for my CT scan results.

I am still awaiting my CT scan results which were done 4 weeks ago now. Hoping n...
Curry777 profile image

efudex ( fluorouracil 5)

My dermatologist has suggested and prescribed the above medications for my face ...

still positive for covid

was negative after 8 days for 2 days then have what I am pretty sure is a covid ...
ap64 profile image

Update.

Spoke with Dr Sidra my haematologist yesterday. My red cells are still being des...
Jacksc06 profile image

End of term report!

So I just heard from the CNS that I have no evidence of CLL cells, sensitivity ...
Steffi50 profile image

thoughts on brukinsa treatment

Hi ALL from Florida. 1st follow up after June diagnosis. Blood work remains 99% ...

Started O plus V a few weeks ago. i have a question

I feel great after a few infusions and am starting pills next week. My bloodwor...
elm1 profile image

Richter's and Novel Treatments/Combinations

We've had a few members post about Richter's recently so I thought it might be t...
Jm954 profile image
Administrator

Gout?

I have developed an incredibly painful big toe which is slightly swollen. It is ...

Appetite, weight, energy....

So, I am 13q deletion, mutated, watch and wait for about 7 years. Latest white c...
battanim profile image

How do they decide which treatment?

Hello. Back on August 21 at my bi-annual hematology checkup, my hematologist sai...

Rash that won’t go away

I thought I’d share a picture of a rash that’s now over 2 months old that my CLL...
Louie_CC profile image
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