Grover’s disease

[BlueJk]

I have had CLL for about five years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to Spondylolisthesis. I feel like I’m recovering as well as I can expect from the surgery. My hemoglobin dropped to 10 post surgery so I have been very tired but I am moving around fairly well with restrictions. While in the hospital I developed Grover’s disease. My dermatologist did biopsies to confirm. She treated me with a two week course of zithromycin and topical steroid cream. I am doing better but still developing a few new lesions each day. I have read that this disease may be associated with hematologic cancers. I’m wondering if other CLL patients have encountered this disease and if so what I might expect going forward. I’ve been pretty miserable with these outbreaks.

[AussieNeil]

This community is not currently active, so I recommend you follow the far more active CLL Support community with over 21,000 members, many of whom are from the USA: healthunlocked.com/cllsupport and post your question there.

Neil