I'm new to the site

I am 50, mother of 2 sons. Diagnosed CLL almost 3 years ago. I'm in the watch and wait category, closely monitored every 3-4 months due to 17p deletion and P53 oncogenes. Looks like a nice site for support and information.

[BCTexas]

Hi,

I have two sons of my own. I was diagnosed with CLL last September age 47 on W&W You will find everyone here is very supportive and friendly. I call this site my second family. 😎..

Best wishes,

BC

[tclementi in reply to BCTexas]

Thank you for the kind words!

[mgh348]

Welcome! You will find lots of information and support here.

Maxine

[mgh348]

Be sure to join the CLL Support Association here on HealthUnlocked to access lots of info and support.

[tclementi in reply to mgh348]

They are great as well! We do a lot of work with them and want to do more!

[nkferg]

Welcome, Have you seen a CLL specialist and had advanced genetic tests done?

Nathan

[rdjusticedavis in reply to nkferg]

Where do you find a CLL specialist, or how....??

[nkferg in reply to rdjusticedavis]

This is the list published by a CLL specialist. cll-nhl.com/p/cllnhl-doctor... . 17p puts the original poster at high risk, I would see a CLL specialist as soon as you get the chance. There are genetic tests beyond FISH that could potentially alter treatment plans. I would look at the list and see who is in your area. Call them and see if they take your insurance. I would then have your primary put in a referral for a second opinion. I can not speak for others, but if I was 17p I would probably move my care to a CLL specialist if I had one close by. The great news is that a lot of new drugs have just come out and are in trial that have been very effective CLL.

[Hidden in reply to nkferg]

Thanks for the info. I have already consulted with a CLL specialist due to my 17p. I will check out the link up you suggest for comparison.

[Hidden in reply to nkferg]

Yes I am followed by my regular hematologist as well as my CLL specialist.

[tclementi]

Hi there, we are glad you are here and know that you will have meaningful conversations with our other members. Be sure to watch our videos so that you are informed and empowered! Let me know if I can be of any further help!