20 days post kasai liver biopsy report

[DHESEEGHANN]

my baby boy was underwent kasai on this day 49 of birth. his eyes are still a bit yellowish and stool slowly starting to get yellow. his biopsy report came out a little late. doctors said that they found mild to moderate fibrosis . No cirrhosis . they asked us to remain calm and keep the fingers crossed for about another 1 month to let us know how exactly kasai procedure went. its a very painful waiting period i guess. me and my wife are terrified everytime our son poop. checking his pook like lunatics . his every cries made us to worry if he is crying in pain inside or just for milk. i wanted to know about mild to moderate fibrosis . anyone had this kind of report?

[Thomas2]

I feel mild to moderate fibrosis is ok, last year when I discussed regarding biopsy report with my doctor she told it's all depends upon luck,she has seen successful Kasai with severe cirrhosis pt and failure even with mild fibrosis to normal biopsy report... don't worry God is there....all the best....

[DHESEEGHANN in reply to Thomas2]

thanks alot for the reply... I cant stop praying for my son to be healthy and hope his kasai works successfully without the need for Liver transplant. me and my wife had seen enough pain he gone tru up to this day... we dont dare to see more. plz dear brother. pray for our little one. we had him after a very painful infertility journey. we really want him to be healthy.

[Christian_mom in reply to DHESEEGHANN]

I Will pray for you and your baby. I Guedes God sent me here Just for that.

My baby girl had some liver problems but It was more than 1 year ago and God made a miracle.

God bless you and your family.

[SELVARAJA in reply to Christian_mom]

Thanks alot sister... Very much appreciated....

[Salani in reply to Christian_mom]

Can i know what is ur baby girl’s liver problem?

[Christian_mom in reply to Salani]

She had the diagnosis of biliary atresia, by the specialist, because of ALL the clinical condition and the blood test resaults.

All the ultrasound and even the scintigraphy could boy show anything. The doctor asked for a biopsy, and prepare to a cirurgy to open her and possibly check the problem and correcto it. One day befote the biopsy, she got a flu and could not be in the procedure. We waited onde week and, during this time, she started to improve and the blood tests had a shy improvement. We decided to wait another week.

She improved by herself and the doctors do not have an answer. My husband is a doctor (not liver specialist) and his father too. They can not explain why her liver dos not work well for 2 months.

I hope you can understand my story. God bless you all.

[srajeshwari53 in reply to DHESEEGHANN]

How is ur son now

[Vineyard2020]

How long has it been since his Kasai? My son had his Kasai done 2 weeks ago and his bilirubin is up slightly. We are very nervous.

[SELVARAJA in reply to Vineyard2020]

How is your son now

[Vineyard2020 in reply to SELVARAJA]

His kasai has failed. He has been gaining weight and infection free so they are going to wait as long as possible before transplant. I am so sorry this has happened to him. Thanks for checking in.

[Edwin184]

We will pray for your son.my baby had kasi on 05/11/20.we faced same situation.it took almost 3 month to normal his lab results.dr said his surgery is successful.