Warrens Journey

[warrensmomma1224]

Warren was diagnosed with biliary atresia at 3 weeks old and at five weeks he had his Kasai he has had some bumps in the road but other than that he is perfectly healthy and just a wonderful baby he is 4 months old

[Hidden]

How lovely!

[rockyraina]

My boy was also diagnosed with BA when he was 3 weeks old and had the Kasai when he was 4 weeks old. He is 4 years old now and will start school in September. One thing is for sure we as a family value the good times in our lives a bit more now .... but we know we need to stay strong and ready when times are not good. Love him,cherish him, enjoy him.

[YBiliaryAtrecia in reply to rockyraina]

Your boys story gives me so much hope. Thank you for sharing.

[Hidden]

My 6 week old girl Tiffany was diagnosed 2 days ago. She is going into King's college Hospital today.. right now I am 1 frightened emotional Daddy right now 😢😢

[YBiliaryAtrecia in reply to Hidden]

I hope Tiffany is doing awesome now. Would love to hear from you.

[YBiliaryAtrecia]

Well done Warren

My brave little baby girl is going in for her Kasai next week. she will be on her 4 weeks and 4 days.

It has been tough going so far. I hope my resilient girl will bounce back well and make us proud.

[Janah]

My girl just had her kasai last week. She was 2mos and 19days. We stayed in the hospital (philippines) for 10days. She is doing well but im scared what will happen ahead of us. Anyone can share to ease the burdens we had inside?

[Hidden]

Hi sorry I haven't been on here for a while... unfortunately Tiff has spent most of her time in Hospital since the Kasai, it wasn't successful for her.. but she is doing OK. She's listed for transplant and has been now for 5 weeks. This is a rough road but we're walking it together and loving little Tiff every minute of every day! I wish you all well in your journeys.

GOD BLESS XX

[Hidden in reply to Hidden]

Lovely to see you all on Thursday at Kings, keep in touch and we are here if you need anything - Tom

[Hidden]

Hi there, we met on the ward at Kings, I'm so Sorry to hear that the Kasai was not a success for your beautiful little Tiff. Keep a watch out for when we are at Kings again and we can have a chat if you are there at the same time.

With my very best wishes

Jacquie

[Hidden]

He's adorable