Post kasai surgery : Hello everyone... - Children's Liver ...

Children's Liver Disease Foundation

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Post kasai surgery

Yuie profile image
Yuie
10 Replies

Hello everyone, may i know when will the jaundice resolve after the surgery done? I’m very concerned about my lil bby, she just turning 3

Months old, before this her poops show a very yellowish color, but just now when she poop the color is a bit pale does this means the kasai is failed?

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Yuie profile image
Yuie
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10 Replies

HI Yuie, This must be such a worrying time for you but the only people who can answer your question is the medical team. If you have already been discharged from the hospital you can always ask for your daughter to be seen by the consultant, in the meantime here is a link to our Biliary Atresis leaflet: childliverdisease.org/wp-co...

Regards - Jacquie

Yuie profile image
Yuie in reply to

Thank you for the reply, tomorrow will be her 1st review with doctor, after 2 weeks of post kasai, they will do some blood test , hopefully everything going well

Leef profile image
Leef

Hi yuie! My son had his kasai at 70 days old and right after surgery his stools had color but his bili levels kept rising. It wasn't until 2 months post kasai did his bili levels start to come down. It takes a while before you will know if the surgery has failed or not. Just remember you have a strong baby! Let me know if you have any questions. Your family are in my prayers!

Yuie profile image
Yuie in reply toLeef

Tq leef, I really hope everything going well.. hoping that she won’t need a liver transplant, since we don’t have it here.

Heyladydee profile image
Heyladydee in reply toLeef

Hello Leef, how old is your son now? My son was diagnosed 3wks ago exactly today at 10wks of age when Kasai was performed.

Leef profile image
Leef in reply toHeyladydee

Hi! My son will be 7 months this week!

Heyladydee profile image
Heyladydee in reply toLeef

Congrats!!! 😃 does he need to take medication?

Leef profile image
Leef in reply toHeyladydee

Yes he take ursidiol, and vitamins

Heyladydee profile image
Heyladydee in reply toLeef

I was thinking that would be our same regimen once we are in the clear. Thank you for giving me some reassurance with your responses 🙏🏼

Leef profile image
Leef in reply toHeyladydee

No problem! Please keep me updated with your little one and I will do the same!

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