HI Yuie, This must be such a worrying time for you but the only people who can answer your question is the medical team. If you have already been discharged from the hospital you can always ask for your daughter to be seen by the consultant, in the meantime here is a link to our Biliary Atresis leaflet: childliverdisease.org/wp-co...
Thank you for the reply, tomorrow will be her 1st review with doctor, after 2 weeks of post kasai, they will do some blood test , hopefully everything going well
Hi yuie! My son had his kasai at 70 days old and right after surgery his stools had color but his bili levels kept rising. It wasn't until 2 months post kasai did his bili levels start to come down. It takes a while before you will know if the surgery has failed or not. Just remember you have a strong baby! Let me know if you have any questions. Your family are in my prayers!
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