My 2nd daughter had the kasai at 6 weeks old in Leeds due to biliary atresia. We were in Leeds on Monday for first check up since the op and she seems to b doing well her bilirubin is now 11....... Even tho I got good news I am so struggling with the fact no-one can ever tell me she will b ok and she is better...... I would love to hear positive things from people who r in my situation as it's such a massive thing to get my head round and sometimes I struggle.
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