Hello

[LittlestWarrior]

I'm a mother to a beautiful almost one year old who was diagnosed with biliary atresia when she was just about 8 weeks old. we are currently preparing her to be listed for a liver transplant.

[Hidden]

Oh so little, do get in touch if you need to talk or would like any information. Jacquie

[LittlestWarrior in reply to Hidden]

She's almost a year old now but still the size of a 6 month old

Thank you so much ♡♡

[Carol1663 in reply to LittlestWarrior]

Our daughter was transplanted at age 7 but was only about the size of a 3 year old. After transplant she thrived , doubling her weight and growing 6inches in a year.

[LittlestWarrior in reply to Carol1663]

I noticed that most BA babies are tiny <3 before transplant anyways. It's so nice hearing all the success stories though. It puts my head in the right place

[Carol1663 in reply to LittlestWarrior]

Trying to stay positive is really hard when everything is new and scary. You wouldn't be the first one to feel out of their depth. All I know for sure is that there is so much progress in treatment and those looking after your little one really care about what they are doing.

[LittlestWarrior in reply to Carol1663]

Her Doctors and nurses are all very involved in her case they personally love my baby and that also helps the situation a little bit

[Hidden]

Keep an eye out on our website to see when we are at clinic at your hospital and it would be great to meet up

[LittlestWarrior in reply to Hidden]

Will do thank you ♡

[YBiliaryAtrecia]

Hi how is the littlest Warrior doing now? Wish her everything good. Feel free to ask any questions you may have. I have a brave warrior at my home waiting for her LT too.

[LittlestWarrior in reply to YBiliaryAtrecia]

Shes doing well she didn't need her bigger surgery so we are planned for discharge on Monday. Tuesday would have been a month here

[deliverEgypt]

thinking of you I know you will be strong for your angel

[Hidden]

hi I'm a daddy to a little girl called Tiffany who like your little princess was born BA. failed kasai at 7 weeks, and transplanted at 7 months we celebrated her 1st year liver anniversary yesterday funny enough.. she is doing amazing! I know where your head must be right now and the feelings you'll be having. if I can help in any way ill try!

[LittlestWarrior in reply to Hidden]

It's definitely been a tough one. We've been in the hospital for just about 4 weeks now due to a couple big varicies in her esophagus. She had thrown up so much blood she ended up needing two transfusion and a handful of other small procedures. Luckily we are doing okay right now and will be going home Tuesday. I'm emotionally drained at this point but so proud of how well she's done during all this chaos.

[Hidden]

wow this sounds all so similar to our Tiff. the 1st bleed she ad scared us all so much, we had never seen anything like it! she had 3 0r 4 more after that and the last one was when they put her in a induced coma for her own comfort. she was transplanted 5 days later and if you never lived it you'd not believe us today if we told you she's amazing in everyway. i hope Tuesday comes quickly and you manage some time at home together' before youre back for more opps.. what hospital are you in??

[LittlestWarrior in reply to Hidden]

Luckily we are in Boston Children's hospital in Ma. The best hospital I can hope to be in.

Transplants do wonders <3

It'd be very nice to not have to come back here as inpatients again for a little while. As much as I love all her Drs and nurse and fellows, I miss my life at home. And I know Anoura (my baby) misses home just as much as I do

[Hidden]

my wife has also set up a face book page called uk liver parents and families you may find some support on there also