Gilberts syndrome

[Ali2309]

Hi . My son 11 years old have been poorly since Jan. And on and off threw last year . Always run down . His bloods confirmed a diagnosis on GS last month. Hes had to stop all sports as this is flooring him . Symptoms are

Tummy pain espcially under the ribs right side.

Nausea

Exhaustioned that he cant manage school alot

Headaches

Filling of fulness after eating small amounts or drinking any water /juice

WE have been referred to hospital paediatrics in 2 weeks . His whites of eyes were a bit yellow this week. His bilirubin was 35 .

Any advice or any info on how to manage this .

Once hes better as soon as he plays football hes floored for days..

[Bettymay80]

I’m sorry to hear about your son. My husband has Gilbert’s too. But he never gets that sick. Are you sure that’s a confirmed diagnosis? Did he do more work up besides labs? HIDA scan, Cholangiogram? Ultrasound? GGT lab?

[Ali2309 in reply to Bettymay80]

Hi thanks for replying . No tests just 4 blood tests have been done . See hospital on Tuesday. See what they say .

[Monkeypuzzler]

Hello. My 19 year old son has had same symptoms as your son & has suffered on and off for 3 years with just 2 extreme flare ups. Never really got to bottom of cause but has recently been diagnosed with Gilberts but only as I saw the blood results & queried it as he has yellow tinge when unwell. I’m beginning to think that this is the cause of his problems but an attack to the immune system like a nasty virus sets it off with terrible flare up of symptoms. I would be interested to hear the outcome of your Son’s tests & hospital visit. I really hope he has improved by now.

Best wishes