I’m looking for other Choledocal cysts patients like me. I’m 29 and I was diagnosed with the disease as a newborn.

[toni54321]

I am now as an adult having problems with abdominal pain so bad that I ended up in the emergency room. Only for them to give me ultrasound and a cat scan and sent me home with pain meds. Not knowing enough about this disease that strikes 1 in 500,000 people. I know something is seriously wrong but where do I get help?

[Emma-2]

Did they not see anything on the scan? Where is it u are? Am in Scotland and they would run bloods aswell as do scans for my baby for any symptoms that could be related. Sorry you are in so much pain, hope you get someone to help you.