Daughters bowel & liver transplant

[Cparm]

Hi all,

My daughter (7 months) is having her pre transplant assessment now. The doctors are saying she will most likely need a liver & bowel transplant. Has anyone been through this or know anyone. I am so worried as most children just have liver not bowel along side it. Bilirubin has shot of to 500 as she has a bad sepisis infection at the moment. But normal in the 200s.

Thanks Chloe

[Richachhabda]

Why bowel transplant ? What problem exactly she is facing ?

[Cparm in reply to Richachhabda]

She was born with gastroschisis and has short bowel syndrome. We've try for months to get her to tolitrate the feeds but she seem to only be able to get to 18ml per hour untill stoma output becomes high. She's has real trouble asulbin anything. She has a Hickman line so is tpn dependent.