Our daughter was diagnosed at 14 weeks (very late, the NHS Trust paid compensation) She was operated on and the surgeon held out little hope of success. Her ascites got worse, and the only prospect for recovery was a liver transplant. Weeks went by without a donor, by now it was Christmas. It couldn't get much bleaker. Then she recovered. Ten years on she has such a strong chance of never now needing a liver transplant, the good doctors and staff of Kings College Hospital are using her as a case study. Happy to answer questions on all this.
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