Day 2 for Tiff: Today Tiffany had her... - Children's Liver ...

Children's Liver Disease Foundation

2,041 members710 posts

Day 2 for Tiff

5 Replies

Today Tiffany had her biopsy... we are all waiting for results although we have been told it's 99% looking to be BA.. I have found this site a God send even writing my experience and all of our journey so far is helping me to process things. I am finding all the staff at King's BRILLIANT!! I just want my little girl home. I appreciate all your stories as I'm gaining hope from them all

Thanks from

Baby Tiff' & Family x

Read more about...
5 Replies
Skibud profile image
Skibud

Youre doing gr8, I know it's really hard & you're still in shock, but try not to think too far ahead, take a day at a time, as what we've found is that the Dr have to give u worst case scenario, but even if they have the same condition our little people are all different & unique. Our little man is 3 & we went through what you're going through, they thought it was ba but when opened him up to do the kasai found it wasn't that. As the others have said, you're in gr8 hands & they will look after her for you. Give David at Cldf a ring for a chat & some support, they are also there for any of your family to speak to, as it's hard enough processing it yourself, never mind taking the rellies through it. Give her lots of cuddles & remember to still take photos of her & with her as every day is part of her little journey that you'll look back on in years to come, when she's running round chasing all the boys xx

danielsmum profile image
danielsmum

I hope you have got the results through by now. This will become a journey for you all but you will get through it. You need to stay strong and be there for each other. As previously said you are in good hands with the doctors and Cldf will give you support. My son was born with Biliary Atresia and had the kasai at 7 weeks. He had a liver transplant at 6 years old and he is now nearly 16. Since having the transplant he has done extremely well. But reiterating again what others have said take each day as it comes and enjoy your little girl.

jdiv profile image
jdiv

Stay stong n positive. I know exactly what you going through and you will get through this. You are in our prayers. God bless

Amylene profile image
Amylene

Hello! I came across to your post. My sons liver biopsy is today. I am so nervous that I hope everything will turn out good and praying that his liver is normal.

in reply toAmylene

I hope so too! Tiffany was diagnosed with B.A and had her kasai at 7 weeks old, she then had a transplant at 7 months. She is doing great, I hope your results are good but if not I'm sure although stressful you'll cope just as well as we have

Not what you're looking for?

You may also like...

First post! my 2 year old has hepatitis...not viral?

Hello, our 2 1/2 year old has been poorly on and off for about a year. Just looking for advice! He...
HanandJo profile image

Elevated ALT - 2 months post kasai

Hi all, My daughter has biliary atresia. Kasai done when she's 4 weeks old. Bilirubin went down...
4rie profile image

PFIC 2 / PEBD

Hi All, My name is Ashley. This is my first time here. My 15 months old daughter has PFIC 2 and is...
ak717149 profile image

Diagnosis Day.

Today the biopsy results came back.. biliary atresia is the cause of all this...... Tiffany will...

STACEY my 2 yr old has PFIC

Hi All xx This is my first time here, I won't go into all the details but my 2 yr old daughter has...
Stacian profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.