Just wondered if there was anyone who has a child with Choledochal Malformation. My little girl was poorly and in hospital alot at the beginning of last year with Jaundice, pancreatitis etc which carried on throughout the year. The Drs were baffled by it, we had various theories from chest infections to constipation. It basically it took all year and loads of investigations but we've been to Kings a lot and they did mrcp and ercp to get a diagnosis. The Drs have told us that she kind of has but not quite, has Choledochal Malformation. The appointment was quite late and rushed and we were told to go home and Google it and go back to them with any questions. I just wondered if there are any parents of children with this condition as it seems very rare and all that is on the internet is studies which show all sorts of statistics and serious implications.