Any advice?? : Hi, my son is six months... - Children's Liver ...

Children's Liver Disease Foundation

2,003 members703 posts

Any advice??

AlisonM profile image
5 Replies

Hi, my son is six months old, and since having his kasai at 9 weeks he has been really good at taking his medicines and vitamins. But over the last few weeks he's great at taking morning urso and vitamins, but when it comes to night time he takes most of the urso, but he'll spit most of the phenobarbital out. Any suggestions on how to get him to swallow more of it? It turns into a screaming match every night at 7 before his bedtime bottle.

Thanks in advance

Alison xx

Written by
AlisonM profile image
AlisonM
To view profiles and participate in discussions please or .
Read more about...
5 Replies
kevbhoy67 profile image
kevbhoy67

Hi Alison,

How do you give the phenobarbital?

For our daughter we crush the tablets in the syringe first hand, then add a small amount of water, and give directly from the syringe. She has never liked it but as such a small amount and by putting the syringe into the side of her mouth lessens the chance of her spitting any out.

Maxsmummy profile image
Maxsmummy

My son was the same, I now mix his phenobarbital in his bottle x

aaron1992 profile image
aaron1992

I was the same too, either crush it in with his food or cut it in smaller bits and just give it him in a milkshake worked for me

AlisonM profile image
AlisonM

Thanks for your ideas. He gets liquid phenobarbital so could put it in his bottle, may give that a go!! Will also try to push it more into side of his mouth. Thought I might get to a bit older before he started refusing his medicines!!!

Vin2013 profile image
Vin2013

It's really difficult my son is the same, he's coming up 6 months! Hating all the meds at the moment. When he cries (although it's horrible and kills me doing it) it's much easier to get him to swallow it. He then sits up and is fine. Hoping it will get a little easier!

You may also like...

Advice needed regarding liver transplant and bilary atresia

transplant since his lab results are not showing improvement with pre-surgery results. His kasai...

Looking for positive outcome stories after Kasai procedure.

My son was diagnosed with BA at 51 days and got kasai at 53. Then he had another surgery a week...

Long term after Kasai operation

My son had his Kasai when he was at 14 weeks old . His is going well and now he is two years old and

Breastfeeding an alagilles baby

little man is 14 weeks and was diagnosed with alagilles 4 weeks, suspected in pregnancy as his dad...

High direct bilirubin?

Our little man is 2 weeks and 5 days old. At 3 days old he was put in the nicu with a high indirect...