Today I had my lipid clinic appointment. I was nervous about this one as I have made a decision not to take any more statins. Long story about side effects and a family history of muscle disorder had finally convinced me that this is the right decision for me. I was sorry if I appeared hostile when I was trying to be assertive. Anyway now going to try Cholestagel which has a local effect and not a systemic one..I'll see how I get on.
The dreaded question of what I actually have came up, the nurse practitioner questioning FH again and telling me that it could be that they haven't found a rare mutation even though 95% of the causes have been excluded. She was questioning FCH as my untreated triglycerides are not particularly high.
I have come to the conclusion that I have some form of inherited high cholesterol and does it really matter what they call it. I will continue to try and get it down with some drug but I am not getting fanatical about lowering it to "targets". Good news, blood glucose down to normal levels, is this low carbs, losing a bit of weight, more exercise or stopping the statins....does anybody really know.