I have FH and for the last five years have taken statins which have made me feel very unwell and I have taken CoEQ10 which has helped with the side effects of statins. My latest experience is that I have twice come off statins as I felt that I would rather take my chances and feel better than take statins. I have always had a healthy lifestyle and diet, I run, go mountain walking, cycling but due to FH it does not keep my cholestrol levels down. I was on 20mg of statins and a certain brand which was just tolerable, but on reordering the medical centre chemist gave me a different brand which I had a strange reaction to. When I took the tablets back I was told they had run out of the normal brand I had, so I did not take anymore. Three months on statin free, I feel better and thought better check my levels which were 7.9.
I was called to see the doctor. He is a good doctor but does not really understand why I am having so much trouble with the statins he prescribes, but said that I would be better to go back on them. Again the medical centre chemist no longer had the original brand and gave me a different brand.and I have just started taking them, but this morning woke up with the pains in the arms and tingling in the fingers. I feel there is no real understanding of the issues people face who have to take statins because of FH, I do not want to take them but there is no other alternative. I have tried plant stenol tablets and other herbal alternatives to no effect. The only choice I have is to play russian roulette either take the statins or not and take the risks of stroke or heart attack.