One of my major beefs with the way suspected FH is treated is the complete lack of any kind of psychological support. You talk to a specialist for half an hour if you're lucky (who in my experience, and I've seen 3 all have very poor communication skills and refuse to answer difficult questions, discuss anything, or deviate from the party line of you must take statins or you will die by next week at the latest, and that's it. Although my last one repeated 'it's a patient's choice' about taking statins, it sounded like he'd been told to say it, and he still put the pressure on to take statins.
I'm just wondering what others think about this. I think you should have the chance to see a medically trained but UNBIASED person to talk about the surrounding issues. Ideally the consultants would be this unbiased person, but that seems to be very unlikely
Is everyone's experience as poor as mine, or have others had better experiences?