Hello from a newbie!

[Wobbfem]

Hi, I was diagnosed with a Bells Palsy 2 /1/2 years ago, during the first Covid-19 lockdown. Anyone else out there who has a facial palsy and struggles with the 'new you'? Thanks

[CuppaQueen]

Snap! Also diagnosed with Bells Palsy during the first lockdown and had it for a year plus - now left with the after effects. Yes - it is so hard not looking like yourself!

[Wobbfem in reply to CuppaQueen]

Thanks for your reply, sorry to hear about your BP. I work online all day and hate that camera on Zoom/Teams!

Are you having medical botox? I have had a few shots now and it seems to help with the tightness

[CuppaQueen in reply to Wobbfem]

Yes, I recently started medical Botox! It’s helped massively, however I’m finding it wears off quite quickly.

[Mike1962]

I was diagnosed with BP 6 years ago and 4 years ago it morphed into cancer in my right parotid gland. I was seriously sick for most of 2019 and nearly died in hospital. Now I can’t hear in my right ear, my face is still distorted, I can’t see out of my right eye and I have balance issues. In comparison to now BP seems quite trivial and I would gladly accept going back to that. I’m quite philosophical about all and just try to enjoy everyday. None of us know what is coming to us in the future so make the most of what you have now.

[Chantev]

Still coping with the sequels after getting Ramsey Hunt syndrome some fifteen years ago. I have come to the conclusion that I just have to get on with it. Have had ups and downs, had Botox in the past then decided against it on my face, but still have it to keep my eyes open. It has become a way of life and I sometimes forget what I look like, but I’m rudely reminded by a tightness in my jaw. I enjoyed face massages and indulged in them. Yes you have to be philosophical and accept that it could have been worsé. Don’t poison your life with all the negative thoughts, life is too short for that, I know it is easier said than done, who are we kidding. Sending positive vibes, best wishes.

[Hidden in reply to Chantev]

Like!

[stiff19]

hi I struggle with the new me since what was said to be bells palsy 5 years ago, but remains with other worsening symptoms and has been ruled out as bells but no new diagnosis as yet but hoping mir in head next week will shed some light.my face on the opposite side paralysed for half an hour last week , it was scarey.I struggle with the medical neglect and at times with the new me which in all honesty id probably handle more if I knew what it was or causing it. ive become a hermit, I only go out very rarely and feel conscious lately of how I look, not other peoples opinions , my own. ive lost confidence and ik not a shy and retiring person, indeed I was always outgoing and loud. I wonder what id look like now had this not happened