Hi Everyone,
My name is Sean and I’m 54 years old. I live up in north London.
I was born with fibrous dysplasia/McCune Albright Syndrome but wasn’t diagnosed until I was 30 years old.
I have at times suffered from mental health due to my disability. The stigma attached to looking different has been immense at times throughout my life.
My condition is misunderstood and not a lot is known about it, mainly to general health practitioners.
I’m a gay man and I’ve found it hard to meet people and have a relationship with, mainly because I just look different and people don’t get it.
I’m a sensitive guy and have feelings too just like anybody else. I have a dark sense of humour..my best friend will say? I hope I’m not thinking about what I think you are thinking!! and we just laugh as we’ve known each other for over 24 years now.
I hope to share my experiences with others that are affected with looking different and maybe learn a thing or two.
Confidence isn’t easy, having somebody else to talk with builds confidence.
Seán