Baby talk

[Dani1993]

Seeking advice from those who have a co during which could be passed onto their children. I have crouzon syndrome and I have 50% chance oft child being born with it. Has anyone been through this?

[Hidden]

Hi Dani1993 ! I'm really sorry you've not had a response to your post. It's hard for people to offer advice if they have not been through something similar. Have you sought any advice about this from a health professionals? It might be helpful to do so if you haven't already.

Tiffany

[Dani1993 in reply to Hidden]

Thank you I am waiting to speak to the geneticist but was hoping to see if anyone had gone through this process themselves.

[Hidden in reply to Dani1993]

It's good to hear you've reached out to the geneticist, I hope you'll find the answers you're looking for. Wishing you lots of luck.

Tiffany

[Dani1993 in reply to Hidden]

Thank you. Is there any support groups or chat rooms where we can talk to people with similar life experience.

[Hidden in reply to Dani1993]

Yes we have support group called Peer Group Chat for adults based in the UK (18+) who wish to connect online, share experiences and support others with appearance-related concerns. This is available by live webchat, audio-conference or Zoom videoconference. You can read more about it on our website changingfaces.org.uk/servic...

We have a new group starting next month and it will be audio only. If you're interested in joining you can call our Support and Information Line on 0300 012 0275. The line is open 10am-4pm Monday to Friday.

Tiffany