Alopecia hair condition

[Jan87]

Hello

I'm new to the group and I spoke to a lovely lady on the emotional helpline who told me about your group today.

I have Rosacea, fibromyalgia, ME and now tinnitus,but I also have Alopecia which is causing me so much stress and anxiety I am now on a waiting list to speak too a well been practitioner to talk too about how my loss of hair effects me I do have hair length but not at the top, sides and the back is going it’s very thin, fine and frizzy, I have always had it long it’s 17 inches now and yes wigs I have but it’s hard to wear them on my head its hot in winter and summer too so can’t win, I know people wear scarves but it’s not for me as reminds me of cancer as my mum died from cancer and my sister died this August so a lot of stress on top, I have kids point and stare and laugh and adults as well, I don’t like going out due to this and it’s causing me so many problems, it started ten years ago but has got so much worse.

If anyone is in similar situation please share any advice and tips.

my husbands family he has four grown up kids but even so when they come as the two girls have lovely long hair I feel they look at mine and years ago when they were younger used to laugh to themselves and it has stuck in my mind so I now put a wig on but feel I shouldn’t have too but I do.

Kind regards

Jan

[PB58]

Hello & welcome to our group Julie. I do hope that you are able to express your feeling freely here without any fear of prejudice or judgment. It sounds like you are in need of support from like minded people who understand what you are feeling. This will be the right place for you to unburden your worries & start to re-gain some confidence.

[SamChangingFaces Partner]

Thank you for sharing your situation Julie87 - I'm sorry to hear you are finding things challenging. We are glad that your conversation with our Support and Information Line has led you to this supportive community.

[Gorgonite]

I feel for you, I really do. That was a very honest post and I felt the emotion. Unfortunately I don't have any advice, well nothing that would help but I'm here to chat anytime.

[Hidden]

Hi Julie - it was me you spoke to on the phone last week! Great to see you here, and thanks for sharing your story with us. It sounds like it's been a really tough year for you, so I'm glad you're talking about it and getting some help. How are you doing now? Have you had time to have a look at our self-help resources? If so, what did you think?