Lichen Planus has changed my life.

[22PoohBear1951]

Hi, my name is Sue and I am 64 yrs young.

Diagnosed with Lichen Planus 2 years ago. It has now affected the whole of my body; taken my hair, tear ducts closed, mouth (well that's just a mess), skin is not too bad at the moment, ears (gungy), nether region sealing up and stings. In fact most apertures are getting smaller. It is hard some days to get out of bed....... but at least I still can.

I used to be a fun loving extrovert, but now shy away from meeting people, this is mainly due to my hair loss. Everything else can be disguised, or is not visible, but I have to wear something on my head. I tried a wig, but wow was that itchy, so now have a variety of skullcaps.

Is there anyone who has same/similar symptoms??

[lovesradio]

Hi Sue

Try googling for a support group locally and nationally as that's a good way to get talking to others dealing with the same horrible conditions. In my wig wearing experience I gradually found it less itchy but also you could ask for a wig from a different manufacturer as they do not all have the same lining material. Good luck xx

[22PoohBear1951 in reply to lovesradio]

Hi, thank you for replying.

I bought my wig from a local hairdressers who specialise in wigs. I think it was more about my head feeling hot all the time that caused the itching, I used to stand with one hand holding the wig in place and the other scratching like mad. it still itches even with a cotton bandana 🙄.

Went to Mexico in October and went 'commando'.....yay me.

I will try for support groups in my area, where do you live?

[lovesradio in reply to 22PoohBear1951]

I live in Fife, Scotland and I lost all my hair during FEC chemotherapy after mastectomy in 2007. It was an Edinburgh wig shop that had the contract to supply wigs for mastectomy patients at that time.

Commando in Mexico sounds fab!!