Unfortunately it was a no😢: Hi everyone... - British Liver Trust

British Liver Trust

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Unfortunately it was a no😢

Snips71 profile image
8 Replies

Hi everyone. I hope thy you are all well as you can be.

So my hubbys journey to trying and get fit enough to be placed on the transplant list has come to an end.

For the past 11 months he’s fought to get stronger and he has amazingly managed to do that. The signs were good and they were happy to send his case back to the MDT.

Unfortunately his stress test showed that he had too much calcification in his heart so they were concerned that he may not make it through the surgery so he was declined.

To say we are devastated is an understatement.

To know he will not get any better is so sad. I know what the future holds but hubby is unaware and doesn’t wish to know.

However we are trying to find some positives.

He is doing well He is eating well and we are going out and going on little trips to make memories.

The positives are that he is still here and quite stable even though his liver is cirrhotic and has his acities drained every 2 weeks.

If he had the surgery he may or may not have got through it. Then he would have spent the next year in and out of hospital which of course we would have done 100%. So now he can live life without as many hospital appointments.

He has improved massively since this time last year when I was told he may not make it through each admission.

im sure that he is a cat in disguise having 9 lives 🤪

There are more positives but I don't wish to bore you anymore.

I’m just so grateful thy he is still here giving me grief, making me laugh and wanting to still fight

I myself am struggling to stop thinking about the future and what will be at times. But I try and stay positive for him and continue to care, love and annoy him

I will keep checking in watching your journeys as you are all so lovely and are very supportive

Love yo you all xx

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Snips71
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8 Replies
Sanddeckchairs profile image
Sanddeckchairs

That is a very sad situation. My advice is to enjoy every second of every day and keep up the good work of staying as healthy as possible to enjoy your life together. Good luck to you both. Deb.

Aztec632 profile image
Aztec632

So sorry to hear that you didnt get the news you hoped for.

Live each day as it comes as I believe we should all try our best to do. Difficult to do sometimes when facing so much uncertainty.

It is so very easy to live on ' what ifs!' and I for one have been guilty of that in the past.

Love, live and laugh together

I wish you both all the very best xx

AyrshireK profile image
AyrshireK

Really sorry it's a no for transplant but it's good news that he has built up and hopefully you can still enjoy lots of good days and who knows if he can up his protein levels you may even be able to keep ascites at bay.

Live all the good days to the max.

Best wishes to you both, Katie x

Dogbot profile image
Dogbot

Sorry to hear about the results Sanddeckchairs said it go out make your memories and enjoy life.

From the wife and I 💕💕

Stay safe All

Dogbot 🐶🌈Dave

NieceByMarriage profile image
NieceByMarriage

Wishing both of you all the best and many happy times together yet to come. He's done ever so well to improve his strength and get stable. The main thing is to try not to dwell on what might come in the future and enjoy the here and now.

retwos profile image
retwos

All the best for you n your husband xx

2022minks profile image
2022minks

Sorry to hear this news, and especially after all your hubbies hard work, you are both not alone in this many have had the devastating news of being not being eligible for transplant and it is heart breaking so sending you both much love. We are all here for you both to support you how ever we can, go make memories. If you can get the difficult subjects sorted out he is upto discussing his wishes for care, his affairs put into order so that going forward you know what all his preferences are and you can concentrate on the time you have together. If you ever need to offload, we are here, I can from my own experience say it is a hard journey and amongst some of the worst times there is still magic and love and an honour to be there beside your loved one 😘

Breakfastbabe profile image
Breakfastbabe

I am so sorry that you did not get the news you were hoping for but you are so right about making the most of each moment and creating memories together. My husband is in the same boat due to his age and PVD. In a way I think it came as a relief to him as he has had enough of hospital appointments. He just wants to get on with life between drains, enjoy trips out and not worry about the future. He has taught me to try and do the same . I worry about the future too but then I think we could get run over by the proverbial bus before things get worse. I hope you can go on enjoying those precious moments for a good long time to come.

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