Hi everyone. I hope thy you are all well as you can be.
So my hubbys journey to trying and get fit enough to be placed on the transplant list has come to an end.
For the past 11 months he’s fought to get stronger and he has amazingly managed to do that. The signs were good and they were happy to send his case back to the MDT.
Unfortunately his stress test showed that he had too much calcification in his heart so they were concerned that he may not make it through the surgery so he was declined.
To say we are devastated is an understatement.
To know he will not get any better is so sad. I know what the future holds but hubby is unaware and doesn’t wish to know.
However we are trying to find some positives.
He is doing well He is eating well and we are going out and going on little trips to make memories.
The positives are that he is still here and quite stable even though his liver is cirrhotic and has his acities drained every 2 weeks.
If he had the surgery he may or may not have got through it. Then he would have spent the next year in and out of hospital which of course we would have done 100%. So now he can live life without as many hospital appointments.
He has improved massively since this time last year when I was told he may not make it through each admission.
im sure that he is a cat in disguise having 9 lives 🤪
There are more positives but I don't wish to bore you anymore.
I’m just so grateful thy he is still here giving me grief, making me laugh and wanting to still fight
I myself am struggling to stop thinking about the future and what will be at times. But I try and stay positive for him and continue to care, love and annoy him
I will keep checking in watching your journeys as you are all so lovely and are very supportive
Love yo you all xx