diarrhoea post transplant

[NicharrisonMarch2022]

hi everyone.

I’ve got a bit of a complicated one and wondering if anyone has had similar. Since my transplant in March 2022 I’ve had I’d say 99% loose stalls - diarrhoea.

I’ve had numerous scans showing no IBS or IBD but I do have diverticulitis.

during the early stages of my recovery it was thought it could be the medication causing it, or various bugs due to low immune system, now I’ve been able to stop a lot of the early tablets I was on, I’ve still got the same problem. I’m lucky enough to be back working, but as I’m at different jobs throughout the day, the worry of finding a toilet is always there !

The tacrolimus I currently take is Advagraph 4mg

If anyone has had this or knows of someone who has, is there any tips of how I can try a manage it, or what their end outcome was.

Thank you.

[BritishLiverTrust3 Administrator British Liver Trust]

Dear NicharrisonMarch2022,

If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[Chasdog]

Hello,

I had similar issues to you and it was due to the brand of mycophenolate that I was taking. The consultant changed the brand and I have been fine ever since. I hope you get this sorted soon. Best wishes

[NicharrisonMarch2022 in reply to Chasdog]

Thank you. I was moved early from adaport, to advagraph becasue if the side affects I was getting. Since then though I’ve stayed on these.

I will ask my coordinator if it may benefit changing, these are a slow release capsule i take once a day.

[Fides]

I'm on Sandoz Adoport and the main thing I seem to have a problem with is the opposite, I have to drink a lot of water and be careful what food I eat or I stack up with horrible constipation, also have to take lactulose 4 times per day to keep me regular.

Still on 20 tablets per day, folic, mycophenolate, Adoport, Ferrous sulfate, D3, Amlodipine, Lansaprazole, Metaformin and Gliclazide.

The immune suppression is a right pain, have to be so cautious to avoid other people's germs, colds and flu.