Blood Tests : I’m sorry to be on here... - British Liver Trust

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Blood Tests

Sophia1968 profile image
29 Replies

I’m sorry to be on here yet again, but I have just picked up my blood results, they are not the main liver ones but I’m a bit worried and would appreciate any help as to what they mean, six months ago my platelets were 268 they have now dropped to 229 I’m worried that they will keep dropping cos I know these are important regarding the liver…. My white blood cells are also lower but I never understand whether they are better to be low (I would assume no infection) or should they be higher as in ready to fight, my red blood cells have yet again risen, they rise every time and are now 5.59 (limit is 4.80) even my haemoglobin estimation and haematocrit have risen and are above the cut off, im assuming these are all liver related, im a bit worried that they will keep rising but I have no idea what they mean apart from the rbc not having enough oxygen , weirdly my creatinine is always low on the start of normal at 44 and even that is now 56 I know it’s in range but it’s never been over 45 …. My potassium first time ever is also just above cut off I just wonder if anyone could tell me what these over the limit bloods actually mean , I don’t mean as a diagnosis but just to learn thier relevance I supposed thank you x

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Sophia1968
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29 Replies
Oscar21 profile image
Oscar21

Stop worrying love. I don’t think we are allowed to post test results.

But my platelets are only between 50 - 60. They’ve been this low since diagnosis nrly 11 years ago. And I’m doing ok. Not a perfect life but I’m still here.

Speak to the GP or ring the nurses on here tomorrow. They will explain the results to you b

Sophia1968 profile image
Sophia1968 in reply to Oscar21

hi I’m sorry to post on here, I purposely didn’t include a lot of the numbers because I was not sure if I was allowed to, I didn’t want a diagnosis but just wanted to understand I suppose, I have a heart scan next month and some of these bloods point to the heart so I’m just getting a bit freaked out, esp as I’m still dealing with the liver problem , thank you though my lovely xx

Tizzwas profile image
Tizzwas

Hi SophiaWhere did you get the results from? If your GP then they should be able to explain them to you. I'd expect if they were concerned they'd be calling you. But if you need to ring the nurses here they should be able to help x

Sophia1968 profile image
Sophia1968 in reply to Tizzwas

yes from the gp, I have mentioned my concerns regarding the rbc keep rising , but I just feel that the doctors do not have the same time as they had before and only deal with emergencies now, my reads have been rising and rising but it’s ok I’ll just leave it cos I will only stress trying to get some one to listen, thanks for your help hun.

Tizzwas profile image
Tizzwas in reply to Sophia1968

Don't leave it if it's bothering you love, it's important. Give the liver nurses here a call, please don't give up xx

Sophia1968 profile image
Sophia1968 in reply to Tizzwas

thank you tizz , I’m obviously having a bad day 😥, thank you for caring my little love xx

Audiking profile image
Audiking

Hi Sophia, try not to worry too much I know that’s easier said than done. I’m sure the drs would of contacted you if they was concerned of the readings. I’ve read your posts and seen how hard your trying keep this up and stay positive 🙂

Sophia1968 profile image
Sophia1968 in reply to Audiking

thank you so much , I really feel like I’m a nuisance to you all, but sometimes I just can’t cope with all the worry, I kvow things are wrong but I feel like I’m on my own and I get scared, I’m dreading the heart scan cos after the liver one I’m just scared they will find a problem there as well, esp with these raised bloods etc 😥 I feel so guilty because I was cross with that man who kept changing his name and listing every symptom of liver cirrohsis, because I felt he was being disrespectful keep asking the same things, I can honestly see where he was coming from now, he was scared , I feel awful and wish I could find him to apologise because I feel like I am now him , I am doing all he did and I understand now, poor man …. im usually so compassionate and full of empathy but I wasn’t and it plays on my mind, I can’t find him as I can’t remember any of his names ….. I just feel so messed up and I’m sorry I put it all on you lot, but I thank you so much for replying and I really mean that xx

Audiking profile image
Audiking in reply to Sophia1968

Your definitely not a nuisance and you will always find support here. It’s better to ask questions and find support no matter how silly the question may seem if it’s on your mind there’s a chance someone can help you. From my diagnosis 7 months ago I never would of believed things could look how they do now you’ve got to keep having faith your doing the best you can for your body and hopefully in time your body starts to respond. Yes there is still bad days and suffering with mental health as well I know how worry effects you. Take one day at a time and keep praising yourself your doing great 😊 Always here for a chat

Sophia1968 profile image
Sophia1968 in reply to Audiking

you are a darling, thank you so so much for your lovely words and kindness xx

Schnoodle2017 profile image
Schnoodle2017 in reply to Sophia1968

sorry to jump in here. I understand and know what you’re going through with results and health worry. I’m the same. Can’t relax. Feel like a trapped animal some of the time.

I had an abdominal ultrasound on 27th April. Had to wait an entire bank holiday and didn’t get results until 5th May. Moderate fatty liver parenchyma and pancreas and haemorrhage cyst on right kidney. Result were post on online patient record. Thrn, had to face ANOTHER bank holiday! Not heard from GP but they been in contact community diagnostic and they recommend further scans/different scans. Don’t know if that’s for all three problem or just the cyst. I’m phoning them today see what they say. I’ve really waited long enough.

Yeh, I understand what you’re going through. You all come here because while waiting doctors etc to contact you, you need someone to talk right now. Places like this offer instant contact while waiting. Sharing experiences really do help a bit. I’ve been tracking this hub just to learn more about what going on with me. What to expect etc. you just wanna know at the end of the day.

Take care and try to find moments to relax and distract yourself. Just to get through the wait and the not knowing for sure.

Tizzwas profile image
Tizzwas

DO NOT THINK YOU'RE A NUISANCE. You are not.That other person wasn't legit.

We're all here for you xx

Sophia1968 profile image
Sophia1968 in reply to Tizzwas

ha ha oh hun, you shouting at me made me smile , Thank you for being there, it means so so much to me xx

Tizzwas profile image
Tizzwas in reply to Sophia1968

Anytime. It's so hard when you don't have anyone to give you answers xx

Sophia1968 profile image
Sophia1968 in reply to Tizzwas

it really is hard , I’ll end up so mentally unstable that I won’t care , maybe that’s a plan lol xx

Tizzwas profile image
Tizzwas in reply to Sophia1968

Haha well slightly mad can be fun!

Sophia1968 profile image
Sophia1968 in reply to Tizzwas

😜🤣😜

BritishLiverTrust8 profile image
BritishLiverTrust8ModeratorBritish Liver Trust

Dear Sophia1968

Test results vary according to both the individual’s whole health and the laboratory analysing the results and should always be interpreted by the user’s own health care professionals.

We suggest talking this through with your own doctor or health care professional.

As others mention, if you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays) or you can email them: helpline@britishlivertrust.org.uk

Best wishes

British Liver Trust

Sophia1968 profile image
Sophia1968 in reply to BritishLiverTrust8

thank you very much, I must pluck up the courage to phone the nurses , I keep putting it off xx

Iro1 profile image
Iro1

HiThis is something I call help you with, my platelets have been as low as 198 they are 260 now they were 400 when I had gall bladder abscess so stop worrying!

Sophia1968 profile image
Sophia1968 in reply to Iro1

thank you for your reassurance hun, I’m just worried they will keep dropping like my rbc keep rising, if I’m honest I’m more worried about my blood count than anything else, I’m sure I have something else going on as well as the liver, im gonna speak to my dr on Tuesday and tell her I need to get to the bottom of things, it’s been going on for too long now xx

Scrags64 profile image
Scrags64

I wouldn't worry too much about that platelet level. Mine are usually around 75!! I have to have monthly bloods and if they go down to 50 I have to stop all medication and immediately go on steroids. Neither my hepatologist or haemotologist are panicking at 75. Not sure about the others as they have never been raised as an issue, but maybe I should have a look at them as well!! X

Sophia1968 profile image
Sophia1968 in reply to Scrags64

aww thanks for your reassurance hun, I’m sure your rbc and haemocrit are ok, im not even sure they are to do with the liver, I honestly think mine are a separate issue, I wonder why platelets go up and down though , I was disappointed more so because I have been eating more healthy than I ever have and thought they would be better not worse lol, I hope you are doing ok though my lovely xx

Scrags64 profile image
Scrags64

Thanks for your kind words. I am doing ok. 4.5 years since I bled out at home and 10 weeks in hospital. 22 gastroscopies, more than 70 variciles banded but I'm here to tell the tale. X

Sophia1968 profile image
Sophia1968 in reply to Scrags64

oh bless you hun, you have been through so much, I hope all is ok for you now xx

Scrags64 profile image
Scrags64 in reply to Sophia1968

Heck of a lot better than I was lol. Now only have to have gastroscopy every 6 months rather than every 6 weeks!! X

Sophia1968 profile image
Sophia1968 in reply to Scrags64

well that is good to know hun, I’m so pleased for you, after such a lot to deal with you deserve a bit of a break xx

Iro1 profile image
Iro1

I did to particularly as I am having venesection with blood being taken, bizarrely they only went up when I was really ill with my gall bladder. I had the same feeling about my albumin and alt. My albumin went down to 38 but then back up to 41 my alt down to 17 back up to 27.

The nurse told me normal is normal, that bloods fluctuate and that platelets are notoriously difficult to measure I had a score of 216 and 248 from the same sample lol!

That feeling of decline is all in your mind, if you do decline you will know about it read the entries from other folk. My last set of bloods is the firts time I was within every boundary even my c active protein was 7.

Why not attend the BLT zoom events? It would be nice o put a face to your posts?

Sophia1968 profile image
Sophia1968 in reply to Iro1

thank you for your reply, I prob am worrying too much, but you know your own body don’t you, I just worry because I feel things are not right and I want answers , but in reality everything takes so long esp now, my c reactive protein (crp) was 14.5 in oct 22 ( should be below 5) it is now 10.5 so lower but still high…. My esr was 37 and now 24 so it’s also come down a bit, my dr said these inflammation markers are not usually liver though, not sure if that’s true….as for zoom, I’m useless with technology and have never even Skyped or face timed lol, maybe one day I’ll learn to be a bit more modern and tech, then I may surprise you and pop up ha ha xx

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