Still confused

[mulebag]

mulebag

3 days ago

Update on my confusion:::I'm STILL CONFUSED🙄

1. Told I have bad NAFLD in May and pre diabetes. Told to see diabetic nurse and loose weight.

2. Diabetic nurse told me I'm not in fact pre diabetic at all.

3. Waited 4 1/2 months for call with hepatology consultant who thought I was diabetic! I told him I'm not. He then said I have cirrhosis and that I'd be monitored for any changes and to continue losing weight.

4. Blood tests for GP as just joined new practice. She said the letter re fibroscan doesn't mention cirrhosis and my lft bloods are all normal

After already having had these conflicting diagnosis, I now have a new one🤨

My ultrasound scan last week showed no signs at all of cirrhosis, just fatty liver. Portal vein and blood flow is fine and my spleen is also good. Radiographer said if there was cirrhosis it would definitely show up on the scan.

My next scheduled phone consultation with hepatologist is not until November 2022🤨. So now what I ask myself 🤔

[Seoe]

I think that’s it for now If they told you NAFLD and that they have done tests and your not in any immediate danger than 1-2 years is the pathway.

In that time use it to get to healthy weight and lifestyle.

I think that’s all they can do at this stage. If it was worse you would have more intervention but at this stage they want you to manage it. They need you to manage it as so many people out there to treat.

It’s harsh but I think that’s it.

Are you in pain or anything else as it’s not easy living with fear. As for diabetes a healthy weight and lifestyle will help that too

[Dd4560]

Well, you should definitely ask your consultant why he said you have Cirrhosis if other tests are not showing that. That seems like a very annoying situation to be in. Did you leave out any other information or is this one of those incidents where the consultant made a mistake?

[mulebag in reply to Dd4560]

Nothing has been left out at all. It's so frustrating. If the consultant has made a mistake, it's a big one as it's scared me so much.

I'm actually going to go to Hungary in the New Year to have some extensive tests done and to actually see a hepatology consultant in person. Hopefully I will gain a more exact diagnosis.

[Dd4560 in reply to mulebag]

You can't call the office and have them explain what's going on? It's a pretty big deal to just leave it up in the air like this.

[mulebag in reply to Dd4560]

To be honest I've lost all confidence in all of them. I don't think I can trust any of them. The hepatology clinic told me that they are really busy and to get an earlier phone appointment than the one scheduled for next November is the earliest one.

[Dd4560]

You stated your GP told you about your fibroscan results, do you know if she has your kpa and cap?

[mulebag]

She just told me that it didn't mention cirrhosis.