Still,Confused, results.

Back again,a few more results,/!,last march my liver was severely decompensated, Oct 41.6 kpa,although at test was 39.,still high, had varices banded,Now all my bloods or good, early august I had a report saying Child - Pugh A 5, 1-5 years 95% if abstinent, I have just had another letter saying, All recompansated,and doing extremely well,all signs of varices obliterated, portal hypertension gone, does any of this make any sense.just waiting results from scan and feta protein,hope you all are as good a can be,

[AyrshireK]

All sounds good, it is entirely possible for a decompensated cirrhotic liver to recompensate once the cause of the attack on the liver is ceased so your continued sobriety is doing exactly what you would hope - stopping the attack on the liver is allowing the liver to heal a bit and signs of decompensation have reversed.Child Pugh A is the least severe end of cirrhosis (score of 5-6). Life expectancy isn't hard and fast - if the cause of your liver disease is dealt with it needn't either progress further or lead to a life threatening state.

Great news that your varices have gone, no sign of portal hypertension etc.

My hubby was decompensated in 2012 with bleeding from 7 varices and deranged bloods, in 2014 listed for transplant, 2015 improved so much he was delisted. Still stable now all these years later & bloods are near normal.

Keep up with the sobriety, keep following doctors orders, exercise, eat well and that liver can last years and years. Hubbies consultant has patients on his books with a cirrhosis diagnosis of 20+ years and they arn't at deaths door nor needing transplant. Your liver is a very forgiving organ but you need to look after it from now on.

Katie

[Hidden in reply to AyrshireK]

Thanks, I am truly greatfu

[Tia2021 in reply to AyrshireK]

That was lovely to read, it really gives hope to those of us whom have had such grim diagnosis, Thank you so much, Take care xx😊

[Minuta in reply to AyrshireK]

Hi Katie,

My partner has decompansated liver, he was in hospital for over a month, he had ascites, had to be drained, he scored 54 on the Maddrey score, poor diagnosis. He was very poorly and for 2 weeks it was touch and go, but he pulled through. He is now home, he has to be on a diet of healthy eating and moderate exercise. He has no intention to drink again and he says he wants to live, however, when it comes to it, I find it very hard to motivate him to exercise and eat more. He was never a big eater, but now he needs to be. He lost 7 kg in under two weeks, he spends most of the time sleeping. He is showing promise to improve, but if he doesn't put the effort in himself, it might be a lot more difficult. Are there any ways to motivate a person in this condition, given that he still has slight encephalopathy, that you know of, please?

Any advice will be greatly appreciated.

Many thanks,

Alina

[AyrshireK in reply to Minuta]

It must be really difficult, in our case hubby never lacked motivation so I didn't need to do much encouraging other than the snacking and eating regularly where I basically just kept taking him a snack regularly and encouraging him to eat them.

He comes from a back ground of long distance walking and as soon as he left hospital he was desperate to get on his feet - he set himself wee goals and pushed himself to reach each one. The first goal was going to the bridge in the village (about 1/2 mile there and back) to gradually extending.

He's up to about 15 or 16 miles max now for his walks and in the past couple of weeks has also started cycling after buying himself a mountain bike - he's out just now doing a 9 1/2 mile bike ride.

We are 9 years in and hubby remains fairly stable having at first spent time in ITU after his big bleed.

Just encourage and if you can be in it together, exercise together etc.

Katie

[Minuta in reply to AyrshireK]

Thank you Katie,I am happy for your husband and you and thank you for sharing, keeps the hope alive. I will see how we can tackle it together.

Alina

[Tia2021]

Well done, you must be so relieved, there is hope always, you have obviously got it right to have such good results, Take care xx

[Hidden]

Well done, you must be so relieved. X

[Kristian]

Yes all makes sense and sounds good. 👍