My meld score is 12 and my Glasgow score is 6, what is life expectancy at meld 12 roughly, I know it can get better, it’s only been 6 months since I nearly died from alcohol, cirrhosis stage 4, decompensated.
My livers getting better and my kidneys are working good my consultant said, but at the stage I’m at at the moment just wondering how long roughly?
Hi Jimmy, I cannot comment on the meld score just my story, I had severe decomposition of the liver, I ended up with triple organ failure on kidney dialysis on life support in a coma with literally no chance of survival I'm over 3 years sober my liver is compensated and my kidneys are fine my advice to you is keep doing what your doing we are all different but things can get better it's a long process but I would try not to look into survival rates I drove myself nuts looking things up. I wish you well on your journey were all here for you. Best wishes Hayley
Ahh thankyou, I feel ok I’m only 38 just don’t know what to expect really, will I start to feel worse as time goes on? Can’t really make any long term plans or commitments with money and relationships and body’s not working the way it used to downstairs.I’m eventually eating a bit better on fortisip and vitamins and exercise when I can, I’ve lost a lot of weight just skin and bones really, 6.0ft weight 11.5 stone, dropped about 1.5 stone since being diagnosed and being in hospital, I’m really concerned I’m not gonna be able to put weight and muscle on like I used to have before all this.
Does your meld score go down as you get older to a point when you need a transplant then get assessed before your own liver packs in?
Hi Jimmy, I've never heard my doctor mention the meld score hopefully someone on here can answer this?I too came out severely underweight on loads of tablets, I thought I'd never be able to gain weight but I have, are you under a consultant? I have also dropped my medication by half, hopefully you will be able to put on weight and lead a normal life, you can also ring the helpline for the liver trust I've used it a lot when I first came home they are so helpful, keep safe Hayley
Yeah I’ve got a consultant meld score is scale on how much you need a liver transplant and how bad your liver is I think but it must signify roughly life expectancy?
hi there i came out hospital 7 stone now 11 5 in weight i 5 foot 6 just eats lots protein and meats veg to musle side things i cant build musle but my consulant said she think putting me on creatine that would help a lot and build big arms with in mounths there a thing called scariponia that stops u building new musile
Hi Jimmy, the MELD score (Model for End Stage Liver Disease) is a tool used by doctors to calculate severity of liver disease - to the patient it means very little (a score of 12 would tell doctors that around 6% of patients might die). It doesn't give a prognosis as to how each individual will get on.
What is more important to you as the patient is getting yourself as well as you can and dealing with any symptoms that you might have. If you have managed to knock alcohol on the head then you will find your decompensated symptoms will hopefully ease and there is no reason why you can't live quite well even with a damaged liver. My hubbies consultant has patients on his books who have had a cirrhosis diagnosis for 20+ years.
Most patients (including my hubby who nearly died of a massive bleed due to non alcohol related cirrhosis in 2012) have never been told their scores. Even when he was listed for transplant we never knew what his score was. In the UK they tend to use UKELD score to determine transplant listing with a score of 49 being the minimum UKELD required for listing (except where other factors are at play).
The Glasgow Alcoholic Hepatitis score goes from 5 to 12 with any score over 9 indicating a poor prognosis.
Have a read at the BLT page on cirrhosis to give you guidance on what to look out for as regards worsening of symptoms. There is also excellent guidance on living with a liver condition and a patient charter that might help as regards making sure you get the appropriate level of care.
britishlivertrust.org.uk/in...
britishlivertrust.org.uk/in...
britishlivertrust.org.uk/li...
Katie
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