Happy new year to you all.
I wonder if you can help. As previously posted my partner has decompensated cirrhosis, portal hypertension, enlarged spleen and has now developed ascites. He's been laid up for about 8 weeks with no improvement. He can't sit up to eat and lays in bed all the time. He can make it to the toilet. He is short of breath all the time and coughs a lot. He is malnourished and has lost lots of weight. I'd say about 2 stone in the last couple of months. He doesn't have much appetite but does eat a bit during the day, mainly crumpets in the morning and soup later. He occasionally eats a small amount of food as an evening meal. His arms and legs have gone very thin and his shoulders are bony. He is on spironolactone for the ascites, along with vitamin b, folic acid and Thiamine. He has a hospital appointment on 6th. his first since the ascites developed and his release from hospital.
What questions should we ask at the appointment? I've noticed lots of mention of scores and readings, bilirubin, ggt etc but don't know what these are. He thinks he is dying. He looks very poorly.
Should we prepare for the worst? I've obviously told him he'll get through it and be okay if he doesn't drink again.
His doctor said it could take 18 months to see an improvement. This terrifies him as he's in such pain and discomfort.
Any suggestions or thoughts would be appreciated.
Thank you in anticipation.