Anyone misdiagnosed with fatty liver but it ended up being worse?

[Lonelyinthis]

I have had two CT scans, an ultrasound (found liver to be slightly enlarged 18cm), and fibroscan (6 kpa and 290 CAP). The only diagnosis I have received has been fatty liver. Despite this I still seem to be pretty symptomatic. I have fatigue, hair loss, URQ pain, and generally feeling ill. I have completely changed my lifestyle and have lost weight but still don’t feel well. I had wondered if this was an acute injury due to some heavy antibiotics that I was on and had made me feel a bit unwell for a few weeks prior to seeing the doctor for liver pain. My ALT has only been slightly raised but it has gone up and down a bit between 60s and 40s. Has anyone experienced anything similar? Or been told it was only fatty liver but you quickly and progressively were feeling worse?

[Richard-Allen]

The only thing I can suggest is that you get your gallbladder checked.

The reason I say this is because to liver it’s self doesn’t have any pain receptors. It can’t always tell you when it’s being damaged. However, the liver is surrounded by a thin membrane, this is known as the Gleason capsule this membrane does have pain receptors, so if the liver becomes enlarged this membrane begins to stretch. This can cause some pain and discomfort., but not everyone can feel this. This is one of the reasons why liver disease is known as the silent killer.

If you look at a picture of a liver here online, you will notice how the gallbladder is tucked away under the liver. This also has pain receptors and sometimes a person can have gallstones and think the pain is coming from the liver.

I may be totally wrong here, but it’s probably worth checking out, just to rule it out if nothing else.

Good Luck

Richard

[Laurenluv in reply to Richard-Allen]

Hey Richard! Thanks for the reply. I had a HIDA scan and it came back normal.

[Laurenluv in reply to Laurenluv]

Sorry this is an old account. Not sure why my phone logged me into this one and not the account I originally posted from.

[Hidden]

Good morning ,

I would suggest if you have ongoing symptoms you keep a diary of them, to see if any patterns form and return to your medical team for further assessment.

From a long term liver health perspective with a background of fatty liver disease , making these lifestyle changes will be most helpful - so congratulations on that.

Take care

Trust9