Latest update : Dear all Here's my... - British Liver Trust

British Liver Trust
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Latest update

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Dear all

Here's my latest update for those of you following me!'

Friday I finished taking the cocktail of the high dosage of Amoxcillin, Clarthimyclin and Selidexin 3 times a day for a lung and throat infection causing spiking temperatures ! There was also an indication of kidney/blsdder infection after urine samples supplied.

Last Tuesday routine full bloods were carried out which I did expect would give a clear reading, this was confirmed that my bloods had improved.

Whilst not well I wrote to my consultant coping in my GP! I brought to their attention the numerous up and downs that had been occuring since January! The letter was sent via my nursing specialist by email who replied almost immediately stating she was going to update my hepatologiest!

Friday received email from my nursing specialist confirming my hepatologiest is still none the wiser to what's actually going on and has now decided to send me for another MRI of my bile duct to see if I have sludge or a blockage which I don't believe there is as all pains in that region have gone since taking my medication. I've written back and suggested this appointment be given to someone else who's in more need of an MRI than I. However If its deemed necessary then I shall attend!

Further urine tests in 10 days time have been requested !

May I wish you all a pleasant and enjoyable Sunday!'

Love

ShropshireLass

PS ...whatever's going on with my throat is still there

33 Replies
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O my my you poor thing please just rest I am sure all these ups and downs are not helping in any way. I am so so sorry you feel so poorley, thinking of you...

Paderico

Hidden
Hidden in reply to Paderico

Hi Paderico

Thanks for your concerning note!'I'm glad to say I feel 90 per cent much better since the amazing cocktail kicked in!

I'm now keeping busy with an unplanned new addition to my home of a 6 week old white and black moggy kitten who we've called Merlin!"He seem to be an extremely bright playful chap who loves to lye either in his basket or over me!'😊 I truly believe he's already weighed me up ascaxsoftie who'll rotten him 😊!

Oh well time to do some clearing away of more pine needles outside. The 48 snap dragons have now been planted with a further 18 more to go!

Have a lovely day pottering

Love

Trish x

Well, some good news, if not all🤔. At least you're feeling a bit better, physically, if not mentally😉.

Enjoy the day in your gorgeous part of the world 😍.

Love Steph xx

Hidden
Hidden in reply to mattymoo33

Hi Steph

👍😉

As usual cheers for the kind words !

Love Trish x

Oldham65
Oldham65 in reply to Hidden

As you know I'm pleased you are feeling better but I do wish that that they could sort out what's going on with you. All my love Lynne xxxx ❤️🤗🌈💜

Hidden
Hidden in reply to Oldham65

Hi Lynne

Me too!xxx

Absolutely you should have the MRI. Just because the pains have gone doesn't mean what may be causing them has gone. You will only get a diagnosis if you attend all the scans , tests and the possible biopsy they offer you. If you magnanimously give up scans for someone else who will you have to blame if a problem is found later on when it may be too late to treat? The doctors take a dim view of people who are offered tests etc and turn them down or don't turn up. They are doing it for your sake not for their own entertainment.

Laura

Oldham65
Oldham65 in reply to Laura009

Well said, I totally agree with you, Laura. Xxxx

Laura009
Laura009 in reply to Oldham65

Thanks Lynne xx

Oldham65
Oldham65 in reply to Laura009

You are very welcome. Take care and stay safe. Lots of love Lynne xxxx ❤️🤗🌈💜

Hidden
Hidden in reply to Laura009

Hi Laura /All

I've just sent a further email to my nursing specialist now friend letting her know that I would prefer to carry on with the MRI of my bile duct although I currently have no pain! However my fairly flatish midrift keeps swelling out like a rugby ball, throats still weird and last night I broke out is midnight sweats which is something I never do so whatever gremlin is hiding within he's doing a great job!-

Have a pleasant Monday .x

Laura009
Laura009 in reply to Hidden

Pleased to see you've come to your senses and having the MRI you have been offered. It's all very well going through life being jovial but as many others on this forum will testify, liver problems/disease is to be taken seriously and dealt with accordingly along with any other symptoms which appear.

Hidden
Hidden in reply to Laura009

👍...enjoy the sunshine!"

Hope things at your side are ok with hubby?

Love Trish x

Laura009
Laura009 in reply to Hidden

Yes all great here thanks. Still working hard my wonderful loyal customers have kept me in business throughout lockdown and fitting scrub making in too for Norfolk hospitals. Enjoying this wonderful weather ... we are loving it ! 😎

Hidden
Hidden in reply to Laura009

Your definately an angel and I'm proud of you !

💕

Hidden
Hidden in reply to Laura009

Morning Laura

I think my earlier reply fell into a black hole in cyber space as its disappeared.

I do understand what your saying and agree but sometimes when I'm having a good day/week or month I do feel like a fraud and that my appointment should go to someone higher up the priority list who's in constant pain! I do know your comments right and that my consultant wants to get to the bottom of the cause as it's now over two years since my first route blood tests highlighted the autoimmune disorder /disease plus I know deep down that even after the recent cocktail of antibiotics there's still something going on as my upper gut puffed out like a ball yesterday, throats weird and I broke out in a sweat last night which never happens!

I will write a further note to my nursing specialist this morning!-

Thanks again for your polite kick up the butt ...this is my way of handling things ...always joking.

Love Trish x

Do you take a proton pump inhibitor? Such as omeprazol? Sometimes when you have reflux or Gerd this can cause throat problems. If you aren't taking something for stomach acid then ask gp to prescribe for a short while to see if it improves.

Hope you continue to improve.

Take care

Hidden
Hidden in reply to Wass71

Hi Wass

Firstly its lovely to see you online and hope your doing ok!

I do have a long history of acid reflux going back many years which was treated with medication!' Last year I was diagnosed with an inflammed Esophagus and now take Omperazole once or twice a day which should answer your question!'

Love Trish x

Wass71
Wass71 in reply to Hidden

Hi, Thank you, Im doing much better now, its all taken its time, with a few set backs, but I feel I've turned a corner.

Regarding your problems, I wonder then if some damage has occurred from that persistent issue. I hope they investigate your throat, as I'm sure it's something that shouldn't be ignored if it's not improving. Don't worry about "bothering" the Dr, make sure they are aware if this is just not getting better.

Good luck. X

Hidden
Hidden in reply to Wass71

Hi Wass

I did notice you were dragged through the mill a little after your TP! I'm so glad your on the road to a recovery cause my fingers and thumbs are still tightly crossed!

Woke this morning still with a sort of horse throat causing me to take a few we coughs and deep breaths! I'm going to see this week out and maybe the weekend too before having a chat with my GP to say whatevers going on has not completely cleared yet after the cocktail of antibiotics. ! I'll let by bodies own defence fight it for a few more days.

It's so lovely to hear from of the old crowd .... not old in age I mean ..phew!

Take care

Love Trish xx

Laura009
Laura009 in reply to Wass71

Glad you are doing well now wass x

I hope that they can get you in soon for the MRI scan and get to the bottom of it all xx

Hidden
Hidden

Hi All

Slight error! There's to be no MRI of bile duct which I must say I did find a little weird as I underwent an MRI of my Thorax and Abdomen last November, the previous MRI was accidentally over looked due to pressure of Covid .

It was confirmed yesterday that my recent blood test had highlighted a further raise of my GGT result but not sufficiently enough to warrant the liver biopsy just yet but it was confirmed that the previous weeks cocktail of antibiotics would have affected most of my blood test results so I've been asked to retake another test in a few weeks time!

The nurse said there is something going on with your liver but is still unknown! Hey ho ...hey ho...

Dogbot
Dogbot in reply to Hidden

Hi Shropshirelass

I’m so sorry to hear that you’re going through a rough time I have not been on the site for a while all the blood tests and doctors not knowing what to do with my medication since I had the emergency surgery and stoma bag fitted the wife and I decided we were going to move 🤪.

So good luck with your next blood test I hope they tell the doctor what they need to know so you can be your normal sprightly self 😀💕

Stay Safe All

Dogbot 🐶🌈

Hidden
Hidden in reply to Dogbot

Hi Dogbot

I too wish you all the best on the health front . After 2 years you would think some bells would be ringing!

PBC has now been ruled out because my recent blood tests not supporting there theory, so is it Sarcoid 🤔🤔or still a mystery like me! 🤣

Take care and keep safe xxx

Hi Shropshirelass

When you say Sarcoid do you mean Pulmonary Sarcoidosis ?. the reason im asking is that the wife had that two years ago but hers was Chronic so she fooled everyone because she is white British too old and hadn't been out of the country . She had lumps and bumps all over the place :)

Keep Safe All

Dogbot (don't know how to do emojis on my new laptop)

Hidden
Hidden in reply to Dogbot

Hi Dogbot,

Yes to your question! My consultant is now monitoring me for Pulmonary Sarcoidosis which starts in the lungs and travels around the body leaving granulomas nodules causing inflammation! As I've never had a lung infection or cough or throat issue since the age of 3 then I do wonder whether these 5 flare up since October are connected, only time will tell!

Take care in the meantime 😘

Hi Shropshirelass

The wife’s started with the lumps in her legs and then she got really poorly went into hospital and the amount of doctors that were coming round and saying can I have a look at your legs🤔. I said they have you mixed up with a younger lady 😂🤣, but they had doctors from all different departments until this one doctor came in and said this is interesting and knew it straight away. Then we had every doctor bringing in all the students and we had a real laugh then with all the young men 👨‍💼doctors xx

The mystery’s you and my wife bring to the table keeps us all young 😂.

Stay Safe All

Dogbot 🐶🌈

Hi Shropshirelass

I forgot to say that it was only the MRI scan that proved what it was and it was an amazing thing to see if the doctor shows you if not ask to see it it really is something else, the wife is tending the roses at the moment she wants to take two roses with her if we get to sell the house and get the bungalow we want but she says they don’t like being moved 🤷🏻‍♂️

Stay Safe All

Dogbot 🐶

Hidden
Hidden

Hi dear friends,

Well here goes with latest up date.

A couple of days ago I put in a call to my GP mainly to let him know that my sexy husky voice was still with me and that my son and friends all seem a little concerned that this has been going in since around Jan/February time when I the first temperature flare up

My GP called at 9am and to my surprised I was requested to attend a full medical at 10am! This was my second sort of Covid check over in 2 weeks.

Blood pressure, temperature, pulse, chest checked out, full bloods along with LFT’s , coeliac, thyroid and rheumatoid arthritis blood test were carried out. Just so your aware my GP’s a no nonsense sort of guy and was well aware something going on as he could tell my voice wasn't right.

No further antibiotics were prescribed 😅👍for the previous mild chest infection however he’s requested I have a chest x ray this week even though I had an MRI of my thorax and abdomen last November . If all my results are fairly normal for me that is and my voice is still the same next Tuesday when he calls, then I’m to be referred to an ENT specialist for further investigation ..... hey ho.

On the good new front my GP has agreed to join my mad raft race challenge adventure down the river severn starting hopefully in Ironbridge Shropshire which I’m hoping to pull all together before August 2021.

My aim is to get local companies to build there own rafts and compete and to raise funds for terminally ill children’s ward here in Telford or at the QE Birmingham. The race slogan i’m considering is “ Telford Unite “

Oh well byeeze by folks from one crazy loveable caring friend who’s aiming to live life for the good of others

Trish x

Trust1
Trust1Administrator in reply to Hidden

Thanks for the update Trish, hopefully ENT will help if symptoms persist.

Hidden
Hidden in reply to Trust1

Thank you Trust 1! Hopefully it won't come to this as I'm ok otherwise !

Hidden
Hidden

Hi Guys

Just a wee update for those still following me as its been almost a month since I last wrote .

On the husky voice front, my GP booked me in for an urgent ENT appointment which I received within 2 hours of seeing him as he was concerned that something sinister could be going on, a week later a camera was inserted up my nose and down into my throat to inspect my voice box which was found to be clear, however it was confirmed that my vocal cords have weakened which was possibly caused by the January virus most of you know I had which continued and was still hanging ago 4 weeks ago. I’ve now been referred for speech therapy .

My GP also sent me for a chest x-ray which confirmed my left lung was over the earlier chest infection, this was also a requirement my ENT consultant.

Two weeks ago my hepatologiest wrote to say that I’m still down for that liver biopsy Due to my bloods being raised, but when is still unknown.

With regards to my daily cycling fitness, this unfortunately has been on hold for the last 3 months which some of you already know. A few days ago I found out that I‘d actually fractured my fibula bone and torn my collateral ligament in my left knee from the accidental slip from the shower 5 weeks ago which happened after the cycling accident 2 months prior. I’m now on an exercise programme to strengthen my left knee which my Sports physio will be checking again in 10 days times.

On the sports front , I’m currently organising a local Telford raft race which is being planned for August 2021 which all companies taking part will be raising funds for terminally ill children’s ward, my GP has agreed to be on my team 🙄😀.

Well this is all from me for now folks, loads of love and hugs to everyone of you including admin and to those of you in the shadows 😂

Your loving always. ShropshireLass ❤️

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