Hello everyone, I've had upper right quadrant pain that goes into my right shoulder on and off for 6 years. My liver is sometimes elevated. I have been having constant pain recently and nausea especially in the morning. I have inflammatory Arthritis. I also feel a swelling in my upper right. All tests keep coming back clear xrays etc.
GP,s dont seem to be listening to me and it's all getting me down.
Have any of you experienced a fight for diagnosis
Thank you
Yes!! I started with symptoms 6 years ago but was only diagnosed 4 years ago and that was because we went private for a diagnosis (totally against the grain) we were just banging our heads against the wall!! My consultant took me back on the NHS as he said we had paid enough out which was very true!! Love and hugs Lynne xxxx
Thank you for your reply
I might have to go down the private route
Worried about the expense though
Thank you for your kind reply
Xxx
You are very welcome. We just went private for a diagnosis. It might be worth it. There is also a BMI card you can apply for with the amount you need and pay back monthly with interest. Love and hugs Lynne xxxx
There are a long list of possible ruq causes. I have had a look.
Apparently the liver is only painful if it is inflamed or swolen (hepatitis) which would show up on bloods i believe. 👀
healthline.com/health/right...
Thank you for your reply
Yes my blood is up and down with liver elevation
I believe I might have autoimmune hepatitis which can be connected to my diagnosis of inflammatory arthritis
Sending you best wishes xx
Dear Scardykath
Yes, your problems are typical of many. It is becoming increasingly more difficult to get a diagnosis from the NHS. (Please see other posts from me). I thought that, when I eventually got a diagnosis that would solve everything!!! Believe me it does not. It is just the START of them!!!
You then find you have a basic need to ‘solve’ your diagnostic problems, especially if you get into the realms of ‘needing’ a Prognosis.
You find also that family and friends get tired of hearing from you of your ‘moans and groans’. They will do anything to change the topic!!!
It is at this point that you suddenly feel somewhat isolated as nobody want to hear your story. They start to ‘judge’ you and say things to you like ‘you are getting obsessed with your health’. Now, because you are feeling isolated and unable to express yourself about what you are going through, that’s when the depression and anxiety settle into your psyche. Your need for someone to just listen to you (without telling you about how you can change your life), becomes quite overwhelming.
Hopefully, by now, you’ve added yourself to this Forum. The BLT nurses are brilliant in pointing you in specific directions for you. However, you also desperately need (now more than ever) some solid input from Forum members about how to cope, where to find support and, those with similar problems to yourself, can add a wealth of solid information and knowledge to help keep you going.
Once your ‘Pity Party’ is over and done with, you are then stronger in yourself and your own ability to ‘give something back’ to all and sundry who value your experience and thereby the Forum becomes its own ‘living entity’.
At this point your need for a diagnosis and prognosis are still lurking in the background, but solving those issues becomes merely a by-product of your developing self reliance and you no longer feel that you are defined by these things. On the contrary, you begin to feel a whole new person, and can now be defined by a strong and giving nature. Your happiness is ultimately wholly dependent on reaching this stage of personal development!!!!!
Good luck xxxxx
Thank you for your reply
I've got a lot of pain today that goes deep into my shoulder
Swelling feels like theres a football inside
I cant believe and am shocked at the lack of support people have to get a diagnosis
They are reviewing whether or not to send me to a Gastro doc
Dont know what I shall do if they decide it's a NO
Thank you and best of luck
Check my comments about an hour ago.
Yes indeed , please read my posts to get an idea of how things can be???
