Liver disease and stomache issues! Help

[Bjw7]

I have non alcoholic cirrhosis, heriditary hemachromotosis, small auto immune disease, and my stomach's gets huge, nauseated, flu like symptoms for days not ascites cause I can usually see and feel fluids if this happens. I take zofran I've switched to fish diet due to not being able to eat much of anything. I'm miserable.

[ThreeSmiles]

Hi bjw!

Feeling miserable is pretty normal I would say but hopefully sometimes interspersed with bouts of feeling not quite so bad? Hope so.

What is the situation re our seeing a Hepatologist or any other Consultants? What Hospital are you referred to? What is their prognosis? And what is their/your plan of action?

Please do tell more. It can help people respond - well I hope it will - usually does 😀👍.

Good luck!

Miles

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[Bjw7 in reply to ThreeSmiles]

Thanks! I see my general doctor today. And I also see a gastroenterologist, and hepatologist. I get my scans every 6 months and am on lactulose. Miserable medicine! Not much in plans, continue to monitor, and eventually a transplant when meld score reaches 40 here in the states. So I figure just get hospice when time comes, my meld s ores are still low for now, that's a plus,but I just stay so ill, I'll keep you posted.

[ThreeSmiles in reply to Bjw7]

Hi bjw

Sorry so slow in responding GMail for some reason automatically put your response in a different subfolder in my mail - very odd 👎

How did the meeting(s) go? Quite a busy time for you!

Don’t you like lactulose then I quite liked it apart from it was a bit OTT sweet!

In a strange way hope you get the Meld score you want!

Good luck!!

Miles

[Hidden]

Hi,

It sounds like you are coping with a lot at the moment.....As Miles says above, are you getting enough support from your medical consultants? Is there a specialist liver nurse and hospital registered dietitian working with your liver team that you could discuss your concerns with?

Keep posting, you are not alone.

Warm wishes

Trust1

[Mature_Muscle]

Hi. Sorry for what you are going through. I too have stomach issues that are aggrivating as hell. I get a distended gut severely tight with so much pressure it hurts. I also have dark brown urine that will not clear up no matter how much water I drink. Is this also an issue for you and have you gotten any new info yet about your stomach? I hope everything works out for you.

[Bjw7]

I still haven't got any results. My gp put me on omeprezol. See my gastroenterologist on March 10,with liver disease I think nothing will help. No problems with urine. There are so many foods I can no longer tolerate, especially red meats. It's misery.