AIH-PBC and AI Pancreatitis

[Curedreamer]

Hello. I’m new here and this is my second post. (I posted the same at Vasculitis UK)

I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment)

In February this year I was diagnosed with AIH and in May I had a nasty Vasculitis flare (which I didn’t know what it was yet!) and then doctors said I also had Autoimmune Pancreatitis and ANCA Vasculitis and most likely I didn’t have AIH but there was a chance they were all related so I started with cyclophosphamide infusions. Lungs and sinus got better but liver tests were getting worse so they decided to do a biopsy. Now I know I have not just ANCA Vasculitis but ALSO AI Pancreatitis AND AIH-PBC

Now I’m asking for advice... how can I get rid of the itching on hand and feet? Is there any advice on how to control the pain? What foods should I avoid? Is there anyone else with all of these autoimmune illnesses?

Thanks x

[Hidden]

Good morning Curedreamer,

Welcome to this friendly forum.

I have attached information regarding Auto Immune Heptatitis (AIH) and Primary Biliary Cholangitis (PBC) There is mention of overlap syndromes in the publications

britishlivertrust.org.uk/in...

britishlivertrust.org.uk/in...

With regards to itch, you should discuss this with your doctors as they may be able to offer medication to alleviate this.

From a practical point of view, cool, loose, natural fibre clothing and keeping your room well ventilated and cool. Also moisturising your skin can be beneficial.

If you have pain , this should also be discussed with your doctors.

There is no specific foods to avoid or recommend but a normal healthy diet is best for general liver health. I have included a link to dietary information.

britishlivertrust.org.uk/in...

I hope this helps

Best wishes,

Trust9